Ruxo and diarrhea: Has anyone else on Ruxo had... - MPN Voice

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Ruxo and diarrhea

skipperL profile image
9 Replies

Has anyone else on Ruxo had really bad diarrhoea? Since being on it I have had regular bouts of “ the runs” and have had to take Imodium.

I have felt so much better in all other respects on the Ruxo and don’t want to have to stop using it.

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skipperL profile image
skipperL
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9 Replies
Lab-Rat profile image
Lab-Rat

Hi, no I have the complete opposite on Ruxolitinib (Jakavi), have to take daily Movicol.

skipperL profile image
skipperL in reply to Lab-Rat

I think I would rather have your problem- I had a horrid plane trip yesterday to the South of France running to the loo all the time until the Imodium kicked in!

Lab-Rat profile image
Lab-Rat in reply to skipperL

Oh no 🙀! But do enjoy the S of France🍷!

skipperL profile image
skipperL in reply to Lab-Rat

Thank you so much - at the moment tucking into a cous cous - hoping it won’t make

me worse! Still knocking back the Imodium .....

Wyebird profile image
Wyebird in reply to skipperL

Not sure if it would help but maybe cutting down foods that aid toilet use. Maybe you don’t need fibre anymore. Please note I’m not a dietician.

skipperL profile image
skipperL in reply to Wyebird

I have tried low fibre and no fibre - bland foods - no dairy - nothing seems to work! Thanks for your input .

Wyebird profile image
Wyebird in reply to skipperL

Oh so sorry for your predicament.

Anag profile image
Anag

Hi Skipper. When I had my histamine problem, there were various meds that caused me diarrhea. It is horrific being out somewhere. I remember cancelling events and visits because it could go at any time. Once I go on the AutoImmune Paleo diet, that all went away. I basically fixed up my gut. : )

skipperL profile image
skipperL in reply to Anag

I shall certainly try that - although there doesn’t seem to be a pattern to my problem - I have kept food diaries but can’t find any root cause - maybe stress also has an effect. Thanks for your input.

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