Introduction

[Tomaj]

Good evening,

I have just joined. I was diagnosed with E.T. in November 2018 and I am still on sick leave from work. I am due to finish my initial treatment at the end of January or the beginning of February.

Hopefully, I will be fine to return to work then. I am on here to talk to people in the same situation as myself. I hope this is productive.

T

[mhos61]

Hi Tomaj,

Welcome to the forum. I’m sure you will find it productive.

I also have ET, MPN Voice and this forum has educated me in my diagnosis, but it also keeps me up to date in research and treatments. The great thing about this forum, is the support it offers. If you have a question, post it, and someone will do their best to answer.

As I am 63, I am on cytoreductive treatment. I take one hydrea tablet Monday to Friday along with daily aspirin. I still work part time. Apart from the rare bout of fatigue, I just get on with my life.

Mary x

[Tomaj in reply to mhos61]

Great news. Thank you.

[CalrType1]

Hello Tomaj, welcome. I also have ET and was diagnosed June 2018. I am still working full-time and take Hydrea to control platelets. Battle fatigue, aches, and pains daily. Best to you!

[Tomaj in reply to CalrType1]

Thank you.

[WileyFrench]

Hi Tomaj

I too have ET, no mutation, diagnosed early 2017. Take hydroxy (1 one day, 2 the next), clopidogrel and a baby aspirin. I’ve had two TIAs but other than that, nothing. My life is the same after diagnosis as it was before. This forum has been a great help to me. You’ve come to the right place.

[Tomaj in reply to WileyFrench]

Thanks. Sounds good.

[redumbrella]

Welcome Tomaj to our forum, I have been a member for about 6 months now and get a lot out of it. I have PV jak2 neg for 13 years now. Wishing you all the best.

Garry

[Tomaj in reply to redumbrella]

Thanks.

[Dark-Angel]

Hi Tomaj, I am new here too, diagnosed with ET Dec 2018, trying to learn what I can. I'm not on a treatment yet, I go back next month to see which way they're going to go with that. This has been a 4 year journey to get to this diagnosis, but I was first told I had "sticky blood" 13 years ago, not much attention was paid to it then so I'm not sure if that was the start of it all. I'm working, but just part time.

I've found the posts here very informative, hopefully you will too.

[Tomaj in reply to Dark-Angel]

Thanks. This is extremely helpful.

[Planting]

Hi

Welcome to the forum. I have ET Jak+ and was diagnosed 18 months ago. Just grateful it was found and I am receiving treatment. Better than the alternative. I sometimes have fatigue but life is good.

I take care that I eat well but that’s true anyway. Good luck and knowing you have the help here is great

Planting

[Mazcd Partner MPNVoice]

HI Tomaj, welcome to our forum, as you can see from the replies you have had, the people on here are very friendly and supportive, so I hope that it helps you to be part of the forum. Kind regards, Maz

[Tomaj in reply to Mazcd]

Very much. I am overwhelmed.

[Hidden]

Hi. Welcome to the forum. I am sorry to hear you have been unable to work since diagnosis. Is that to do with your ET and, if so, what symotoms are you getting?

[Tomaj in reply to Hidden]

I have had ulcers in my foot and toes. I was disregarded at the beginning and this has now turned gangrenous. My fifth toe on my left foot is now black. I have osteomylitis and I am waiting for the toe to self amputate. That's why I am off work at the minute.

[Mtn_Lake_4ME]

Hello Tomaj~

I, too, am new to the site. I was diagnosed with ET/JAK2+ 3 years ago. I am on hydroxyurea daily along with aspirin. I have been working full time since diagnosis. Just starting to get impacted by fatigue, but I am hoping it is holiday related. I am curious what treatment you are receiving if you don't mind sharing. I agree with everyone else, eat healthy, listen to your body and I do yoga and some exercise daily. Best to you!

[Tomaj in reply to Mtn_Lake_4ME]

Yes. I am on Hydro and aspirin. Antibiotics for my osteomylitis.