Jakafi weight gain and increased appetite

[rkhabtec]

Was wondering if this is common

[jane13]

hasn't affected me but it is on the list of hazards in the paperwork

[Graham7694]

Sadly yes 😩

[rkhabtec in reply to Graham7694]

Seems I am hungrier but like one gal sasid our spleen is smaller which the stomach is not full .How much weight have you gained at least we are alive

[Graham7694 in reply to rkhabtec]

Probably gained around 3/4 of a stone but I have also stopped smoking which will have a bearing.

[rkhabtec in reply to Graham7694]

Thanks

[Mazcd Partner MPNVoice]

this could be because your spleen is shrinking and therefore you are able to eat more. Maz

[rkhabtec in reply to Mazcd]

Thanks

[Norman45]

Put on 10lbs and eating seriously well!

[rkhabtec in reply to Norman45]

Thanks

[47Robert]

I have put on 4kg since being on Jakavi. Can't seem to stop grazing

[Rachelthepotter]

I gained about 10kgs. whenI started Rux. Too much extra weight for me. Hard to shift. Just wanted to graze.rachel

[RosemaryHarper]

About 3 stones! I think it is the combination of having more time on my hands and not able to take much exercise. But it's probably because I read that you can put on weight with Rux and just stopped watching what I was eating... But even with the weight gain it is so much better than Hydroxy .

[SusanFletch]

Yes when I started but I later realised that the weight gain had more than one cause. The delight in being able to eat again eventually led my plate size to match my husband’s. Once I got my head around what was going on then I was able to eat sensibly again. Yes I’m a bit heavier than pre rux but well within a healthy BMI.

[Rachelthepotter]

Yup. Could do without it. There’s a good clip by Reuben Mesa ( a major MPN reseacher and all round good guy) on - Patient Power? MPNResearch ? giving some reasons why it happens.

Rachel

[Osteomyelio in reply to Rachelthepotter]

Rachel how can I get the clip of Rueben Mesa about Jakafi?

[Hidden in reply to Osteomyelio]

It is on Youtube.

[rkhabtec in reply to Rachelthepotter]

That was a good clip thank you

[Osteomyelio]

My appetite on Jakafi has been very increased. I want to eat everything

[tracey13]

My husband is constantly hungry he's craving sweet food all the time . He's been on ruxolitanib since end of February and we've realised his increased appetite maybe down to the medication x

[rkhabtec]

Yep I am sure mine is also but otherwise feel great

[Psteuer]

I've gained 26 pounds since I began taking Jakafi.