On Thursday I had my first appointment with a new haematologist who is more of a specialist in MPN’s than my previous haematologist. Thank goodness I asked Maz for a recommendation. Dr Ewing was amazing! You may remember from a previous post that my last consultation with the usual haem didn’t go well and I ended up in tears of frustration. Dr Ewing listened to everything I said and we talked about side effects from ET and Hydroxy, and she asked me lots of questions - unheard of previously. I completed a questionnaire on symptoms. She examined my spleen, which was the first time this had everbeen done. She reduced my doseage of hydroxy as my platelet count had previously dropped to 265, which my old haem refused to do. We also talked about changing medication if I don’t feel better with a reduced dose. I also met the CNS who was lovely and very reassuring.
I can’t describe how much better I feel about everything. I am even looking forward to my next appointment in 6 weeks!