I have been for testing and am booked for my bone marrow on the 25th.
My hemocrit is still high but slightly lower than January this year, Hb and red cell still elevated too. Weird it slightly lowered but not anywhere near enough to normal or below high normal.
Chest X-ray clear, echocardiogram good, my heart device is still in place, spleen & liver ok although the guy was in a rush and did it in 7 mins!!!
No autoimmune disease active!!
Waiting for JAK2 to come back.
It seems it's looking likely to have either JAK2+ pv or idiopathic pv.
Having said that he said my lungs were quite wheezy even on puffers.
I'm still getting joint and bone pain, itchy after a tub, & headaches even with it slightly lowered hemocrit (it's still elevated above normal though). I'm still debilitated with fatigue.
So with the spleen even though I ache right there and it radiates up my shoulder and I get hiccoughs and feel
Full quickly, does that mean my spleen is ok or does it just mean it's coping somewhat right now?
He has mentioned venesection to bring the hemocrit down, first it the bone marrow test.
Not looking forward to it but I guess it has to be done.
Thought I would touch base, if you think I am missing anything please do say! You guys are so helpful!!! Thank you so so much!!!