E.T. diagnosed CALR positive searching for more info and people with a similar diagnosis

[CLIFFE]

Recently (last week) diagnosed with E.T. CALR positive so a little scary but low platelets currently, hopefully I will know alot more from you all and it helps me along the way

[Mazcd Partner MPNVoice]

Hi Cliffe, welcome to our forum, we all completely understand how you are feeling at the moment, it is a scary time, I would urge you to read as much as you can on our website mpnvoice.org.uk about ET and the medications used to treat it, and also have a look at the videos which are very informative. Best wishes Maz

[AndyT]

Hi Cliffe - I have CALR+ ET, diagnosed 14 years ago at age 47 and still going strong at 61..!

I was on aspirin only until October 2015 but have been on Pegasys since then, which is working well for me.

It is scary when you're first diagnosed but if ET is managed sensibly it should have relatively little impact on leading a normal life and our life expectancy is pretty much the same as the general population.

If you have specific questions or concerns feel free to post them and I'm sure people will be happy to share their knowledge and experience.

Good luck

Andy