4 years on the trial drug ruxulitnib..feeling fi... - MPN Voice

MPN Voice

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4 years on the trial drug ruxulitnib..feeling fine ..

Twinkly profile image
6 Replies

Since I made the decision to eat healthy ,clean up my bad habits of sugar and fat ,

Gave up red meat and all processed ,tinned food ,and ready meals ,my life has changed for the better ,. I control my weight and have more energy . It's very simple to follow ,I eat all things that grow ..lots of fruit ,lots of veg ,,lots of salads ,drink filtered water and lots of real juice ...feeling great ,looking good ....what's not to like ?? ❤️😘😍💜

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Twinkly profile image
Twinkly
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6 Replies
Jasbak22 profile image
Jasbak22

Well done Twinkly I think diet and exercise are very important in managing our conditions. Keep up the good work.

Helen1952 profile image
Helen1952

You are a real inspiration Twinkly ❤️😀 x

Janll profile image
Janll

Just what I need to hear this morning. There IS light at the end of the tunnel.

I am only one week into my diagnosis of MF, living in Somerset and feeling quite isolated but hopeful. The drug has been mentioned but not tried. Thank you for this mornings lift.

Jan

Twinkly profile image
Twinkly in reply toJanll

When offered a new alternative medicine ,at this stage ,you have nothing to lose . You feel awful very uncertain about your future ,,we all go to that place in the early days ! But if you treat the drug as only one part of your recovery ,to start a new chapter of your life by taking control and changes to be made ,,a new you needs to be built ....on healthier lifestyle ,. Start today my lovely !! Get shopping ..read books ,,eat all growing ,good things to make your blood clean and fresh ...it's not rocket science ! It's just common sense ,,,you are unique ,a one off ,,very ,very ,valuable ..learn to realise your potential !! Love twinkly ..❤️😘😍💜

Janll profile image
Janll

I've always been keen on a good diet and even more so since I've been on steroids for PMR since April 2016. Very proud to say I haven't put on a pound. But lately, feeling so tired and breathless I've succumbed to a bit more sugar (ice cream being my one weakness) I'm sure I could clean up a bit more. Thanks for your encouragement! Bless you today especially.

Jan 💐

mualiz profile image
mualiz

I really need to do this .I have absolutely no will power especially when I am so tired. Sugar is my nemesis!!! I am going to do it...Monday ;-0

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