I'd like to ask which nhs professionals do you see and how often? I'm a bit underwhelmed by information and wondered if others have the same experience.
I was diagnosed with PV in Feb and saw my consultant. He said he'd see me again in a year.
I was on biweekly venesections.
My bloods dropped to 44.4 so was 'signed off' and was signposted to a nurse led haemo clinic. My appt is at the end of June.
After three weeks off I felt rough again and I'm back on the biweekly venesections.
I guess I just have no idea how I'm doing??
Is this what others experience?