husband diagnosed with MPN possibly PV he is now coming of Pregabalin slowly with the hope very soon he will get Ruxolitinib. Coming off the Pregabalin he appears to be going backwards worse night sweats and itching. He still cant take showers or baths very often. 3 Venesections 1st 2days ok then back to itching /nightsweats etc
MPN Sufferer: husband diagnosed with MPN possibly... - MPN Voice
MPN Sufferer
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waddles22
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MazcdPartnerMPNVoice
Hello, sorry to hear your husband is suffering with night sweats and itching, there are some very good hints and tips on our website that might help
mpnvoice.org.uk/living-with...
best wishes, Maz
Can I ask why he need to come of Pregabalin ? I am interested to find out why as I also am on Pregabalin. Thanks.
Anne x
Thank you. I have been on it in various doses for a number of years. I have it for end nerve pain. I have not found it any different for night sweats or itching. My life destroying itching was finally under control with Fexafenadine. Hope your hubby gets something to make life a bit more bearable .
Anne
ruxo is great!
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