For almost a year, I've been through lots of tests to find out what is wrong with me, including three bmp's. Two of them with bone marrow biopsy. I also have sjogren's syndrome and polymyalgia rheumatica. My haematologist says that the tests are inconclusive, but if I hadn't already have the two rheumatic autoimmune diseases, which can give the same changes in the bone marrow, she would have given me the cmml-diagnoses. Do any of you have or know anything about this diagnosis? E.g prognosis and treatment?
Possibly CMML: For almost a year, I've been... - MPN Voice
Possibly CMML
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Bittebitt
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Hi, I have been told I'm "MPN non classified, possibly CMML". I googled CMML and found loads of information, some quite scarey and decided that since it's not a positive diagnosis for me I would stop looking into it. If it becomes a definite diagnosis I will investigate then. I think you could end up worrying about somethng you may not have at all, but that's just my view. Good luck, I hope you can have some treatment that makes things better for you. Best wishes, Frances
Hi Frances.
Thank you for your answer. I think the same way as you. I have googled and read some quite scary things about the condition, and I have decided to have trust in the experts and not worry too much.
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