Been on HU for 6 weeks
Started at 608 platelets the after 2 weeks were 597 then two weeks later they were down to 475 which was very pleasing
Today at my check up they are up to 575 again and they want to increase HU to 1000 mg every other day and then my normal 500 mg the other days
Was also told that if I get a cold or fever to stop taking them and ring her up straight away which I find quit worrying and silly as it sounds it's making me feel nervous about going out and about shopping etc in case I catch something! Am I being paranoid as I know lots of you seem to cope so well and go to work etc amongst people with colds etc
I'm not keen on taking more HU but it's something that I will have to get used to
Also wondering if they will have to keep on increasing it or how long it takes to get things stabilised
I was just beginning to feel a little more confident with it all and now I'm back on a low ebb which makes me feel a whimp when I read what some of you cope with on here and just get on with it . Maybe its still early stages to get round it all , I'm just glad the forum is here with everyone to chat to and share experiences .
I know it's early days yet but feel like I've gone right back to where I started and was hoping to be able to cope a little better than this and be more upbeat .
Gosh I sound like a whimp .........onwards and upwards and maybe better results next time. Xxxxx