Trying to get to the bottom of my MPN (seemingly now unclassified). I had two clots in the Mesenteric vein and Portal vein leading to surgery. At first it seemed my liver had sustained quite a bit of damage - now disproved with a fibroscan. However as the liver had a little scarring they thought I'd been drinking too much, although I was never a heavy drinker and told the hospital as much. Nothing in my letters or notes indicated that they thought I had a drinking problem. However, today I received a letter from the haematology dept. with notes from my last visit. For the first time on the diagnosis it says "History of alcohol excess", yet this has never appeared in any previous letters. I just wondered if anyone else had been wrongly diagnosed with drinking too much if they had had any liver problems with a MPN.
I'm confused as to why it's the first time it's appeared on any notes as I was diagnosed with the MPN in January. I'm chasing up the hospital to find out the reason why.