MPN Voice Patients’ Forum London – Friday 24th J... - MPN Voice

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MPN Voice Patients’ Forum London – Friday 24th July 2015, 6 – 9 pm Watch the forum Online

Mazcd profile image
MazcdPartnerMPNVoice
9 Replies

For the first time the patients’ forum will be available to watch online, so if you are unable to join us in person you can register to watch online.

Register now using this link zoom.us/webinar/register/1e...

to attend online, you will be redirected to the Zoom registration page, you will receive a confirmation email from them and also a link and instructions for attending the forum online.

We will be joined at the forum by Andrew Schorr from PatientPower.eu patientpower.eu/ and PatientPower.info patientpower.info/, and his team, who are facilitating the live streaming. Andrew, a medical journalist, was diagnosed with myelofibrosis in 2011 and has received treatment with Ruxolitinib since 2012, he will be moderating an interactive session at the forum as well as conducting interviews with the speakers, members of MPN Voice and patients and their guests. As well as the live streaming on the night, video clips will be posted online after the forum, this will be via MPN Voice and Patient Power. If you would like to submit a question we will endeavour to answer it during the forum, please email it to info@mpnvoice.org.uk.

The programme for the forum is available on our website ...mpdvoice.org.uk/get-involve...

The forum is now fully booked, if you have not already registered to attend in person, please do not turn up on the night, you will be turned away. If you have not registered but would like to attend in person, please email info@mpnvoice.org.uk, your name will be added to the waiting list, you will be informed of any cancellations.

We look forward to you joining us at the forum, either in person or online.

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Mazcd
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9 Replies

I love that we get to be part of this event. Thank you for all the work you do Maz. I love that we are embracing zoom too, use it all the time for my business and it's fab!

Mazcd profile image
MazcdPartnerMPNVoice in reply to

It will be great for all the people who can never get to a forum to be able to join us, we have a lot of people who live overseas so it will be fabulous to have them involved. I am looking forward to it. Maz

Margo18 profile image
Margo18

Hi

Is it possible to download or save this to watch at another time?

Thanks

Margo

Mazcd profile image
MazcdPartnerMPNVoice in reply toMargo18

Hi Margo, I am finding out for you. Maz

Mazcd profile image
MazcdPartnerMPNVoice in reply toMazcd

Hi Margo, the entire recording of the forum will be available to view online afterwards, so if you can't register to watch it live you will still be able to watch the whole thing afterwards at your convenience, I will send out the details to everyone, it will be a few days after the forum. Maz

liarose profile image
liarose

My husband and I - Barbara and Brian Zuppinger are not now able to attend the forum in London so you could offer our places to someone else on the waiting list. Hope to get to the next one. Any sign of a forum in Cambridge in the foreseeable months.

Mazcd profile image
MazcdPartnerMPNVoice in reply toliarose

Hi Liarose, thank you for letting me know, I will be able to use your places. We are hoping to have one in Cambridge next year, we will let you know. Maz

liarose profile image
liarose in reply toMazcd

Now that I cant get to the forum is it possible for me to sign up to watching on line as I could then watch the first hour and half. Barbara

Mazcd profile image
MazcdPartnerMPNVoice in reply toliarose

Hello Barbara, yes you can sign up to watch online, I can't do that for you as you have to register with your email address so that you can be sent the details of how to watch it, you can register via this link, just click on the link and you will be redirected to the registration page zoom.us/webinar/register/1e...

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