MPN Voice Patients’ Forums 2015

[Mazcd]

We are pleased to announce that we have 2 patients’ forums confirmed for 2015, Colchester and Cardiff.

Colchester – Wednesday 4th February 2015, 4 pm – 6 pm, (registration from 3.45 pm) in Room 2, Post Graduate Medical Centre, Villa 8, Colchester General Hospital, Turner Road, Colchester, Essex, CO4 5JL.

Programme – the programme is available on our website, a site map for the hospital is also available to download, this link will redirect you mpdvoice.org.uk/get-involve...

To register to attend the forum please email [e-mail], please give details of your MPN and the names of your guests, this is for the name badges. You are welcome to bring your family and friends with you. There is no fee to attend the forum. Due to the size of the venue we are restricted to a maximum of 25 attendees, once the maximum number of people have booked to attend we will initiate a cancellation list.

Patient speaker - would you like to give a talk at this forum? Have you been on a drug trial, or had a bone marrow transplant, or would you like to share with others how you manage and cope with your MPN and the varying symptoms that can affect daily life? Hearing from other patients can be very encouraging so if you would like to share your story with others at the forum please email [e-mail] with details of your talk, please include a contact telephone number, a member of our team will contact you to discuss your talk with you.

If you are able to display a poster to advertise this forum you can download one via this link mpdvoice.org.uk/wp-content/...

Cardiff – Thursday 14th May 2015, 6 pm – 9 pm (registration from 5.45 pm), The Wedgwood Suite, Thistle Cardiff City Centre, The Parc, Park Place, Cardiff, CF10 3UD.

Programme – the programme is yet to be finalized, we will publish details as soon as they are available.

A finger buffet and refreshments will be available during the forum, free of charge with our compliments.

A map and travel directions to the hotel is available on our website, this link will redirect you mpdvoice.org.uk/get-involve...

To register to attend the forum please email [e-mail], please give details of your MPN and the names of your guests and any details of dietary requirements you or your guests have, i.e. gluten free. You are welcome to bring your family and friends with you. There is no fee to attend the forum.

If you are able to display a poster to advertise this forum you can download one via this link mpdvoice.org.uk/wp-content/...

Patient speaker - would you like to give a talk at this forum? Have you been on a drug trial, or had a bone marrow transplant, or would you like to share with others how you manage and cope with your MPN and the varying symptoms that can affect daily life? Hearing from other patients can be very encouraging so if you would like to share your story with others at the forum please email [e-mail] with details of your talk, please include a contact telephone number, a member of our team will contact you to discuss your talk with you.

We look forward to seeing you at one or both of the forums.

[Shelly1960]

Have put posters in Maggie and also done posters for Angela to put in hematology and taking some to my doctor's too

[malachy]

Thanks Maz, I am pricing up train tickets and hope to come!

[Mazcd Partner MPNVoice in reply to malachy]

Hi Malachy, great, hope you can make it. Maz

[rubyrubyruby]

Hurrah I am coming, it's the first one I can make

[Mazcd Partner MPNVoice]

Hurrah indeed, it will be great to see you, Maz

[MichyB]

Is this open to just patients, I am my dad's advocate and he has just been diagnosed with MF, I would be interested- he is under Heartlands Care and I am sure my dad would like to meet fellow patients?

[Mazcd Partner MPNVoice in reply to MichyB]

Hi MichyB, no not just patients, as I said in the post, patients are welcome to bring family and friends with them as we know it really does help for our family and friends to learn about MPNs and to hear the speakers, we welcome anyone to come along to all our forums to learn about MPNs, so even if you or anyone else who doesn't actually have a MPN wanted to come to a forum to learn more then that would be absolutely ok with us. If you would like to register please email me at [e-mail]. If there is anything else you would like to know about forums, or anything else please ask. Best wishes, Maz.