My husband who has myelofibrosis, has just had his bi monthly check-up and his platelets have dropped to 97, hence the extreme fatigue I would think. He also had an x-ray on his spleen which has increased in size. It was reducing in size slowly prior to this. They also found what they think are a couple of cysts on the spleen. He now has to have an MRI to see what is going on. He has been taking 20mg of Ruxolitinib daily, but that is now going to be halved to try and bring the platelets back up. Does anyone else have experience of spleen cysts?
Looking forward to some replies.