Pain 24hrs aday everyday.

[MyAcheyHead]

I went cold turkey off painkillers 2months ago as advised by my neruo dr. This is the second time I've done this last time was for 12 mths until my last Neruo put me Tramdol as he said there was nothing else he could do to help me. I had a nerve block injection 2mths ago which did help for about 2 weeks. Until I had 16 cluster headaches in a 24 hrs. Now I'm back suffering everyday with either a headache or a migraine. I'm having at least 4migraine attacks a week, mixed in with clusters headaches. I'm taking methysergide as a preventative for 2months, which has not helped. I'm going stir crazy in pain and I don't get to see my neuro for another 4months. And it's impossible to get a doctors appt.

Has anyone else used methysergide and how long did it take to work

Wishing everyone a pain free weekend.

[Paulacg]

I don't have any experience of this drug, but if you haven't already been on one please get your GP to send you on a pain management course at your local pain clinic. I also found mindfulness based stress reduction really helped me to manage the pain.

[1stgls]

I agree with Paulacg get more help with your pain ---keep going back to your gp --"a creaky cog gets more oil" tough if s/he does not like it, they are paid to care for you so make them do the job. and yes some stress management therapies really help,

[Sybille]

HI. Did you have cluster headaches before the nerve block? I only had migraines before and since I had a nerve block two months ago it has got worse and I've had cluster headaches, I have been prescribed Imigran injections for them. I am off work now, waiting for the effect of the nerver block to wear off. I also tried a detox a few months ago not cold turkey, with Naprosyn. It didn't work

[WellTodayGirl]

Hi

Over 20 years ago, I did try Methysergide and found it didn't help me. (Sorry to cause any disappointment). However, I made a very big mistake of just stopping it. Please do not do this, I lost a considerable amount of hair. I did grow back but quite distressing at the time.

I too exhausted all the options of drugs and treatments, until I signed up to be a guniea pig for the Botox trials about 6 years ago now. I've been haiving Botox ever since,as it is the only thing that has ever helped me. I still get migraines but they are so much less intense.

Please, do investigate this line for yourself! I know that place that you are at right now and it isn't very nice. Methysergide is very much a last resort medicine but, as I have found, there are new treatments and drugs being discovered all the time.

I wish you the very best of luck and please insist on seeing your GP. Also, if you can, please try and get into see Professor Goadsby or one of his staff at his clinic at the Royal Free in London. I credit these people with saving my life,as other neurologists had given up on me.

[teadrinker]

I've been having botox too, with similar results to WellTodayGirl. It's well worth it.

I also suffer from chronic pain in my face, head, shoulder and arm. It does drag you down and it is awful. But there is life beyond the pain.If you can get a referral to a pain management course or clinic that might help you to work out how to get through this. There's a book called "Overcoming Chronic Pain" which is quite helpful.

have you had a look at the Pain Concern page on Health Unlocked? That might give you further support - I'm a member of that too. I've written some blogs on coming to terms with pain - it's not easy. I used to think that accepting it meant giving in to it - it doesn't, but life can be better.

[Kathybishop]

Have you tried taking a Triptan and Naproxen together? Great for my pain !