Topiramate as preventative

[webbs8]

Hi everyoneJust wondered if many people tried these and with what results

Thanks

Leigh

[Mary1959]

Hi I was put on them 2 weeks ago, but after 11 days, I got bad side effects, heart racing, dizziness, and bad migrane. I'm now on higher dose amitriptyline. Everyone's different though, so hopefully you will be ok and they will help you. Best wishes x

[webbs8 in reply to Mary1959]

Thanks Mary and sorry to hear about that for you. I have been concerned about the cognitive side effects too so perhaps will keep looking into others. Hope yours helps for you too x

[Mary1959 in reply to webbs8]

let me know Leigh if you find a good preventative, take care x

[webbs8 in reply to Mary1959]

I will Mary, thanks and you x

[troy04]

You can search Topiramate here and you should find previous discussions, for example: healthunlocked.com/migraine...

[webbs8 in reply to troy04]

Thanks troy

[Dolphin14]

I was on it for a week and developed some memory issues. I stopped taking it and that resolved quickly

🐬

[webbs8 in reply to Dolphin14]

I had heard about that and was bit concerned and at my age of 60 and memory not great anyway! Thanks and think will keep looking

[Dolphin14 in reply to webbs8]

I know some people that have had no problem with it. I was really hoping it was the magic med. Now I'm on sumatriptan which is taken at the start of the headache. It's been a miracle for me.

Best of luck

[webbs8 in reply to Dolphin14]

Yeh think we all hope that we are going to find something that eventually will work for us!! Yes sumatriptan have been an absolute godsend for me when I do get them. 9 out 10 times they work thank goodness and bonus can actually buy them from chemist aswell if run out of prescription onesThanks

[Dolphin14 in reply to webbs8]

I'm so glad they work for you

[katiewalsh]

Hi. I can’t take most of the usual meds, including yours. But I take NURTEC as a prophylactic & it helps-doesn’t eliminate but helps. You need to work with your insurance or it’ll cost a fortune. Good luck. Katie

[webbs8 in reply to katiewalsh]

Thats interesting Katie thanks and will have a look into them too. Yes does mount up what you can spend to try all these things but at the same time when something works it feels priceless. When I have a really bad one and have got something important to me planned, would pay quite a bit everytime! Thanks

[lgd333]

Hi, I was on Topiramate for about 6 months for epilepsy. It was one of the worst medications I have taken with so many side effects. Headaches, dizziness, weight gain (although they say one should lose weight), heartburn, dry mouth, and so much more. Everyone is different. It might work for you.

[webbs8 in reply to lgd333]

Whoa that doesn't sound good and yes I know different things work for different people but I'm going to give them a miss for now. Thanks for your info x

[lgd333 in reply to webbs8]

Good luck with anything you find. One doesn't know until one tries the medication too.

[webbs8 in reply to lgd333]

Thanks and yes thats right, will let you know

[chris608]

Hi ,Not for me!! I had dreadful side effects and my dentist lost most of her hair whilst taking it. I am now back on amitriptyline riboflavin and co enzyme . All working really well. You need to be prepared to wait for three months for the vitamins to kick in.

[webbs8 in reply to chris608]

Oh no yet another couple of people that it wasn't good for! Thanks for replying and glad yours working for you. Yeh thats fair enough and another 3 months after getting them for nearly 50 years is doable!!! Especially if ends up helping. I've got chrons aswell and have read magnesium can help with that too so hoping and praying im going to get a double miracle 🙈🙏🤣 x

[Beach111]

Hi it is working for me. Yes there are side effects, but most went away after a few months. I have become a bit forgetful but for the first time in 60 years I am waking up pain free 99% of the time. Ideally something would work 100% without side effects, but I have never found it. Good luck.

[webbs8 in reply to Beach111]

Thats good thats its working for you. I work with young children with special needs and organise lots of events so decided I don't want to chance any adverse effect with memory etc but really happy for you how much better things are. Thanks

[designer111]

I would be careful! They make people go crazy and I m surprised (or not surprised) this is still available. The firs sdie effects noted in the pack or awful. I prsonally felt anxious and could not stop crying the whole summr.

[webbs8 in reply to designer111]

Thanks for reply and sorry to hear of your horrible experience of them!! I've made decision not to try them now after so many negative effects other have had