Emagality seems to be working for me - National Migraine...

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Emagality seems to be working for me

Leylabell53 profile image
7 Replies

After 20 years of migraines, becoming chronic about 10 years ago, I have finally found a medication which seems to be working for me.

Have tried literally everything else and was finally given Aimovig for 6 months, which didn’t work either. However my lovely specialist at my local hospital didn’t give up on me and prescribed Emagality instead. I have been taking it for 6 months and my migraines have been cut by at least 50% to about 7-9 per month. They are also less painful and more easily suppressed without the use of Triptans.

I have been prescribed another 6 months and I hope it continues to be affective.

Never give up hope and keep looking for an answer. Don’t accept anything less.

One good tip - try a chill pillow for the really painful days when nothing works. It helps to ease the pain.

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7 Replies
Cara71 profile image
Cara71

thanks for sharing and giving me some much needed hope. Did you get Emgality on the NHS? I failed Ajovy which made me think none of the CGRPs will work. Where can I buy the chill pillow?

Leylabell53 profile image
Leylabell53 in reply toCara71

hi Cara. Yes, received Emagality on the NHS. When Aimovig didn’t work I was very disappointed and didn’t think I would be entitled to anymore CGRP treatment. But my specialist said that just because one CGRP treatment doesn’t work it doesn’t mean that others won’t work as well. Apparently they are all slightly different and what works for one might not work for another, and vice versa. So she was prepared to let me try Emagality, which actually worked for me.

Chill pillows are flat blue pillows with a gel inside that feels cold, which is very relieving when you have a painful migraine. You can put them in the freezer for 10 minutes or so to cool them down again as they start to warm up against your head. They are also washable. I’m on my second one in 5 years or so. They are available from hardware shops and places that sell household goods. I think the brand name is JML.

Hope some of this proves useful to you.

PurpleTranmere profile image
PurpleTranmere

That’s brilliant that you have found something that helps with your migraines. I tried ajovy and aimovig but neither had much effect on my migraines. I have found that candesartan is helping cut my migraines down by a third this is the only thing that I’ve found has helped at all. On the waiting list for botox too. Hope it continues to work for you,

Cara71 profile image
Cara71 in reply toPurpleTranmere

what dosage of Candesartan is improving your migraines? I'm on 8 mg (10 made me too dizzy) and it's not helped at all.

PurpleTranmere profile image
PurpleTranmere in reply toCara71

I’m up to 16mg. I was on 12mg but migraines were getting worse again so neurologist asked me to go up to 16mg. I felt dizzy and lightheaded when I started the medication but have fortunately been ok as I’ve increased the dose. Hope you find something that helps you too.

Cara71 profile image
Cara71 in reply toPurpleTranmere

thank you. It's great you've found improvement at 16mgs

Leylabell53 profile image
Leylabell53

Thank you. I tried Candesartan and Botox and they didn’t work. It just shows what I always say, that everyone’s migraine is different and what works for one person doesn’t necessarily work for another.

That’s why it’s important not to give up hope and keep pushing for anything you’ve not had yet.

I really hope Botox works for you.

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