Hello - I have been on here for a couple months because my boyfriend has had a headache for 5 years. It has never gone away. Lately it has gotten worse... so I wanted to share his story.
My boyfriend has had the same head throbbing for 5 years. He had seen multiple doctors/neurologists. We went to another one last Wednesday. Within minutes, the doctor said that he thought he knew was wrong. (Imagine our surprise!) To test our his theory, the doctor had him lay with his feet above his head for 10 minutes. He asked him what level of pain the headache was at when he left us in the room and then again when he came back. It helped the pain go from a solid 5 to a 1. The doctor then shared with us that he thinks it’s a CSF leak. He ordered a blood patch for him. He had a lot of the same symptoms. Read article to find out more:
mdedge.com/neurologyreviews...
I’m definitely not a doctor, but now that we have some idea of what it could be, we are super hopeful!!! It was becoming unbearable for my boyfriend. He had a hard time coming up with words, concentrating, and is always in pain. The blood patch is scheduled for next Wednesday.
Wish us luck!!!
If you are having these symptoms, ask about a CSF leak....
Head
Headaches (frontal, parietal and occipital)
Heaviness of head
Feeling of pressure within the head
Sensitivity of, or tingling sensations within, the scalp
Dizziness or loss of balance
Ears/Hearing
Tinnitus (ranging from ringing and buzzing to pulsatile tinnitus)
Pressure sensations in the ears/ear popping
Feeling of liquid in the ears
Hearing loss (sometimes similar to Meniere’s disease) and dulled hearing
Eyes/Vision
Blurry vision
Double vision
Pain behind eyes
Pain when moving eyes
Facial
Facial numbness
Sinus pressure
Jaw pain/tooth ache
Temporomandibular joint pain and stiffness
Back, Neck & Limbs
Neck pain and stiffness
Back pain (area-specific and general)
Tingling sensations and spams in the spine, back, arms and sometimes legs
Other Symptoms
Rapid heartbeat, particularly when sitting or standing
Nausea and, in extreme cases, sickness
Cognitive decline (including memory loss and loss of concentration)
Cranial Leak-specific
Fluid discharge from ears, nose and to back of throat
Recurring or chronic meningitis
Hope that helps somewhere on here!! Reading your stories really makes me want to find a cure for all migraines and headaches! God bless you all!