Hopeful and helpful

[snoopy2212]

Hello - I have been on here for a couple months because my boyfriend has had a headache for 5 years. It has never gone away. Lately it has gotten worse... so I wanted to share his story.

My boyfriend has had the same head throbbing for 5 years. He had seen multiple doctors/neurologists. We went to another one last Wednesday. Within minutes, the doctor said that he thought he knew was wrong. (Imagine our surprise!) To test our his theory, the doctor had him lay with his feet above his head for 10 minutes. He asked him what level of pain the headache was at when he left us in the room and then again when he came back. It helped the pain go from a solid 5 to a 1. The doctor then shared with us that he thinks it’s a CSF leak. He ordered a blood patch for him. He had a lot of the same symptoms. Read article to find out more:

mdedge.com/neurologyreviews...

I’m definitely not a doctor, but now that we have some idea of what it could be, we are super hopeful!!! It was becoming unbearable for my boyfriend. He had a hard time coming up with words, concentrating, and is always in pain. The blood patch is scheduled for next Wednesday.

Wish us luck!!!

If you are having these symptoms, ask about a CSF leak....

Head

Headaches (frontal, parietal and occipital)

Heaviness of head

Feeling of pressure within the head

Sensitivity of, or tingling sensations within, the scalp

Dizziness or loss of balance

Ears/Hearing

Tinnitus (ranging from ringing and buzzing to pulsatile tinnitus)

Pressure sensations in the ears/ear popping

Feeling of liquid in the ears

Hearing loss (sometimes similar to Meniere’s disease) and dulled hearing

Eyes/Vision

Blurry vision

Double vision

Pain behind eyes

Pain when moving eyes

Facial

Facial numbness

Sinus pressure

Jaw pain/tooth ache

Temporomandibular joint pain and stiffness

Back, Neck & Limbs

Neck pain and stiffness

Back pain (area-specific and general)

Tingling sensations and spams in the spine, back, arms and sometimes legs

Other Symptoms

Rapid heartbeat, particularly when sitting or standing

Nausea and, in extreme cases, sickness

Cognitive decline (including memory loss and loss of concentration)

Cranial Leak-specific

Fluid discharge from ears, nose and to back of throat

Recurring or chronic meningitis

Hope that helps somewhere on here!! Reading your stories really makes me want to find a cure for all migraines and headaches! God bless you all!

[Cally01]

Thank you for sharing Snoopy and good luck.

[licorice99]

Thanks for sharing your story snoopy, I Just learned about this myself.

Hope all is going well for your boyfriend.

[dessireaa]

What type of treatment is your boyfriend undergoing for this?