Hello I am new to group and need some advice.
I have have had migraine with aura since 1989- symptoms are pretty textbook but generally failed to respond to any medication except imigrain but I had severe allergic reaction to this. However last week, had new type of headache for me- with loss of speech. Normal migraines are focused on front of right side with alot of pain in back of right eye and upper jaw. This headache is much futher back in skill. Spent a scary couple of days in hospital but CT scan was clear which is great and now waiting for MRI as double check. But 6 days later still have headache and no speech. I have had some of the usual migraine symptoms now- visual disturbances, nausea etc.
I have also had for over 7 years now muscle spasms which cause my neck to pull over to right side, my right hand to clench and not open. Both feet go into spasm and my eyelids close and will not open.
I have seen numerous neurologist who seem to send me back and forward to each other because they cannot agree- ine says dystonia - but then dystonia specialist says it is not- then back and forward again- always with a 9-12 month wait between appointments. I have been diagnosed with functional neurological disorder- which was then changes to parasoxyaml dystonia back to functional neurological disorder back to unknown subtype dystonia back to we really do not have a clue
Could all these symptoms be migraine related? I get spasms with migraines but also get them when I do not have migraines?? I am very confused.
Is this migraine which has lasted 6 days a 'status migrainous'?
I am not sure what to do next? Work are being a bit strange, they declared me disabled earlier this year because of the impact that my condition has had on my job-i agreed because I was at the point where they were going to take action because of the amount of time I had off sick. They have been supportive and given me extra support since labelled 'disabled'. I am a teacher and obviously with no speech I cannot do my job and I am scared that this might be the final straw as far as my school goes.
I would be grateful to hear from anyone who has had similar symptoms or if you have any ideas that would be great.