How did I end up on the Work Programme?? - National Migraine...

National Migraine Centre

9,248 members2,709 posts

How did I end up on the Work Programme??

proops profile image
2 Replies

I was on DSL and then got moved to ESA on the work related group. I did question it at the time as my condition was so bad at the time and was assured by the advisor that it was just supportive and to keep people "in the loop". I only had 3 interviews in 2 years. I have M.E and Fibromyalgia, carpol tunnel, arthritis, bad joints (EDS suspected), Severe Migraines and on top of that care for my disabled daughter and hard of hearing son. I also care for my elderly uncle with dementia. Then suddenly a month ago I was asked to go in. Very short conversation and told I was being placed on the "work programme" and told I had no choice and to sign I understood. I did protest and ask who would employ me currently but it was just repeated to me. I had an appointment with Ingeus but had to cancel as my knee had given way and I had torn the cartilage and hamstring. However, even though I explained I was on crutches and awating an MRI they insisted I had to attend the next appointment tomorrow (16th May) and if there was a problem getting there to get a cab.

My question is where do I stand? I have never made a claim for support re. my daughters disability and only last August finally sent in a PIP form (which I still haven't heard back from) for both her and myself. I don't claim any other support i.e carers.

How is the decision made? Who makes/made it? Is there anything more I can do?

Written by
proops profile image
proops
To view profiles and participate in discussions please or .
2 Replies
misstah profile image
misstah

I am also a carer with chronic daily migraines. For me to be able to stay at home and care for my son I applied for Carers Allowance which then helps you apply for Income Support, then you will not be expected to work whilst the person you are caring for is on at least the middle rate of care element of dla. The system is crap for carers and the disabled at the mo and I really hope it improves.

heyjude77 profile image
heyjude77

If you think you're in the wrong group - if you think you should be in the support group rather than the work-related activity group - you can ask to be reassessed. This may mean having to put in a whole new ESA application. I'd suggest speaking to someone at Citizen's Advice or another benefits agency for advice on what to do, and help with filling in the forms.

Not what you're looking for?

You may also like...

Migraine and disability

I see so many of you have the chronic daily migraines such as myself. We do not have a pain clinic...
tsheehan13 profile image

Side effects from preventative medicine.

Hi! I am struggling to find a preventative as I seem to be very sensitive to even small amounts...
Jeffner profile image

sudden increase in hemiplegic migraine.

i feel devastated, i had 4 major aura/hemiplegic migraines in 3 days, the symptoms were very severe...
Kevin160 profile image

Does anyone have any recommendations for a good migraine clinic in London?

I went to the GP to talk about migraines and possibly altering the triptans. Apparently I talk too...
sckd69 profile image

Frustration about understanding Migraine

Migraine is a real illness. It has plagued me since the age of 17-18 and has terrorised my life. I...
CJA2012 profile image

Moderation team

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.