Vision loss.: Hi, I suffer with very... - National Migraine...

National Migraine Centre

9,206 members2,689 posts

Vision loss.

cobweb profile image
4 Replies

Hi, I suffer with very bad headaches and also migraines. I had a TIA about 7 years ago & have had several suspected mini strokes since then. My vision has badly deteriorated but it has not been found out why as my eyes are healthy, in fact I had an eye test last week. My whole body suffers from dryness so I have extremely dry eyes.

Yesterday I had a dreadful migraine with pain especially in my left eye. I spent most of the day with eyes closed. Just before bed I had to check my ipad for an expected emailbut was only on it for a few minutes. I had felt dizzy all day. As I got up for bed I totally lost vision in my right eye. I didn't want to cause any bother so carried on to bed. My vision gradually returned in about 20mins.

Today I've felt ok so haven't spoken to anyone about it. I live alone. Should I bother to call my gp in the morning? They have never found any reason for my previous difficulties so should I ignore it?

Written by
cobweb profile image
cobweb
To view profiles and participate in discussions please or .
4 Replies
sckd69 profile image
sckd69

Have you been to a migraine specialist? Whilst I think vision disturbances are not unheard of on migraine sufferers, I think going blind in one eye when you live alone is quite scary. I would as for a referral not just to a neurologist but to a clinic which specialises in migraines. There are a few in London. Although can't think of their names just now.

Charlotte_NMC profile image
Charlotte_NMCPartnerNational Migraine Centre

Any change to your normal attacks should really be checked out as a precaution, so if you can get to see your GP I'd recommend it. In terms of getting a plan for managing your headaches, come to see one of our headache specialist doctors at the National Migraine Centre clinic and we can help you with this to reduce the frequency and intensity of your attacks.

MaryF profile image
MaryF

Hi there you really urgently need to look into whether you may have Hughes Syndrome, The National Migraine Centre did a while back, or so I thought, did a joint study with London Bridge Hospital and Professor Hughes, to pick up patients who have TIA's and strokes with migraines and often turn out to have Hughes Syndrome, otherwise known as APS... most neurologists turn out to either no know about it or dismiss it but it is diagnosed usually with blood tests. Here is the charity: hughes-syndrome.org/

If you notice any of the symptoms fit, under self help there is a list of specialists both private and NHS that you can either be referred to or self refer to. Also here is an article for you: telegraph.co.uk/health/4400...

Please contact me on here if you need additional information. Mary F x

Nospig profile image
Nospig

Hi, have you had a carotid artery ultrasound done? If the artery has become narrowed, sometimes small emboli can occur leading to Tia's , ( mini strokes)

Not what you're looking for?

You may also like...

Vision affected by migraine

Hi I'm new to the site and wondered if anybody has any advice. I've suffered from migraines for 30...
Hawk1113 profile image

Blurry vision and headache

I suffer with a squint in my right eye, which causes a lot of symptoms. I had an operation when I...

Eyesight loss

Hi I have just joined the site and been reading through people'experiences. In an odd way it's...
Bexybex74 profile image

After effect of migraine aura disorientation, vision issues, feeling of disconnection, Help please or advice 🙏🏽

Hi everyone, Difficult post for me as going through alot and don't quite know what to make of it....
Ravks profile image

Vision problems following migraine

Hi, I've had a run of really bad migraines in the past few weeks, which have left me shattered and...
Bea66 profile image

Moderation team

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.