Vision loss.: Hi, I suffer with very... - National Migraine...

National Migraine Centre

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Vision loss.

cobweb profile image
4 Replies

Hi, I suffer with very bad headaches and also migraines. I had a TIA about 7 years ago & have had several suspected mini strokes since then. My vision has badly deteriorated but it has not been found out why as my eyes are healthy, in fact I had an eye test last week. My whole body suffers from dryness so I have extremely dry eyes.

Yesterday I had a dreadful migraine with pain especially in my left eye. I spent most of the day with eyes closed. Just before bed I had to check my ipad for an expected emailbut was only on it for a few minutes. I had felt dizzy all day. As I got up for bed I totally lost vision in my right eye. I didn't want to cause any bother so carried on to bed. My vision gradually returned in about 20mins.

Today I've felt ok so haven't spoken to anyone about it. I live alone. Should I bother to call my gp in the morning? They have never found any reason for my previous difficulties so should I ignore it?

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cobweb profile image
cobweb
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4 Replies
sckd69 profile image
sckd69

Have you been to a migraine specialist? Whilst I think vision disturbances are not unheard of on migraine sufferers, I think going blind in one eye when you live alone is quite scary. I would as for a referral not just to a neurologist but to a clinic which specialises in migraines. There are a few in London. Although can't think of their names just now.

Charlotte_NMC profile image
Charlotte_NMCPartnerNational Migraine Centre

Any change to your normal attacks should really be checked out as a precaution, so if you can get to see your GP I'd recommend it. In terms of getting a plan for managing your headaches, come to see one of our headache specialist doctors at the National Migraine Centre clinic and we can help you with this to reduce the frequency and intensity of your attacks.

MaryF profile image
MaryF

Hi there you really urgently need to look into whether you may have Hughes Syndrome, The National Migraine Centre did a while back, or so I thought, did a joint study with London Bridge Hospital and Professor Hughes, to pick up patients who have TIA's and strokes with migraines and often turn out to have Hughes Syndrome, otherwise known as APS... most neurologists turn out to either no know about it or dismiss it but it is diagnosed usually with blood tests. Here is the charity: hughes-syndrome.org/

If you notice any of the symptoms fit, under self help there is a list of specialists both private and NHS that you can either be referred to or self refer to. Also here is an article for you: telegraph.co.uk/health/4400...

Please contact me on here if you need additional information. Mary F x

Nospig profile image
Nospig

Hi, have you had a carotid artery ultrasound done? If the artery has become narrowed, sometimes small emboli can occur leading to Tia's , ( mini strokes)

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