Migraine misery

[Emz198240]

Hi all, recently been diagnosed with migraine, I've had a headache which moves from the back of my head to the right then left, it feels like pressure behind my left and right eye, this depends on which side my headache is, also feeling unbalanced and sight problems for 2vweeks now! At the same time I also go diagnosed with high BP.. I've had ct scan MRI scan ECG and bloods all which are normal. I'm on candesartan 8mg for high BP, and 40mg daily of propanonol. So far no effect on my.migraine.my BP has gone down. I know 2 weeks isn't a long time, but feeling like this is making me feel down, I'm on sick from work, I also can't drive. Can anyone give any advice please.Many thanks x

[Cat00]

Sadly it can take up to 6 to 8 weeks for a Candersarten to work to it's fullest extent. Mind you it brought my blood pressure down so low I had to come off it and that happened by the 3rd week so it may start working for you soon.

[Emz198240 in reply to Cat00]

Ahh, i didn't know it coukd take that long for candesartan to work to its fullest. Funnily enough I've just done my BP and it was 110/69 that's the lowest reading I've ever had. Thankyou for replying to my post, I hope your new medication is working for you x

[Cat00 in reply to Emz198240]

So many drugs take that long to work, also 6 weeks is when the side effects tend to wear off too if you're having any.

I'm on the CGRP antibody injector now with mixed results but either way it's helped the severity on my migraines a lot.

[DRunnerchick in reply to Cat00]

Cat00, What Mab/CGRP at you on? How long and what dosage? I have migraine w/o aura. Last year when I got my second COVID vaccine (Pfizer) it triggered a 200 day headache that was the worst I had ever had. My neuro-Wizard wanted to rule out other bad juju like temporal Arteritis, a few rarer forms of vasculitis etc. At the same time, his request for Aimovig was denied so we had to try it (it’s a beta blocker- anti hypertensive that can lower heart rate, blood pressure and help with. I was already on topiramate and had tried TCAs.

Propranolol didn’t work for me for HTN or Migraine. So, I have been on injectable Aimovig 70mg. since November 2021. It did stop the 200 day headache but I am still getting sporadic numbness around my R eye. He increased my dose of venlafaxine. If that doesn’t do it in 6 was, he will put in to increase the Aimovig to 140mg/mo.🤷‍♀️Watch•Wait•Hope🙌🏼✨

D🏃🏽‍♀️

[Cat00 in reply to DRunnerchick]

I'm on 225ml of the Ajovy injector Fremanezumab. I had been 13 different drugs/injectables for migraine before then. I've been on it for just over a year and half. They stopped it after a year as was their policy and I went downhill very quickly. It took about 2 months to reinstate me and then it didn't really work for the first few months. Things have settled down now though. I'm feeling very lucky I didn't have such a bad reaction to any of the Covid vaccines! They made my fibromyalgia worse but not my migraines fortunately.

[GeorgiaHase]

Hi there, I am also sufferer of chronic migraines, I was diagnosed in 2020. I'm a journalist for South West Londoner writing an article exploring living with chronic migraines, would you be interested in speaking with me about your experience?