Hi, I have no confirmed diagnosis yet as still awaiting tests but I am pretty sure I have ocular myasthenia. I am also a member of the AF (atrial fibrillation) community and found this forum an invaluable support system.
Is there anybody else out there who would like to share information?
I was diagnosed with AF about 8 years ago, now treated I have had no events for 4 months. I wonder if the AF had been masking symptoms of myasthenia for some time. Symptoms: got very tired reading about -3yrs; dry irritated eyes about-1yr; exercise intolerance, no matter how I tried to increase my stamina, I got muscle fatigue and fell into bed and slept for several hours after yoga or Pilates or any aerobic exercise but gentle exercise was normally ok, as long as not extended. Last Tuesday week developed sudden onset Ptosis (whilst driving, very scary) and had persistent double vision now for the last week so functioning is difficult. Much better in the morning than the evening. Had MRI scan, clear, CT scan, clear, no diabetes, thyroid normal, awaiting antibody blood tests, tested positive for the ice cube test (Mayo clinic rest) recommended by my chiropractor.
I had a look at the Myaware site and forum and I realise that compared to many my symptoms are minimal but wondered if anyone out there has/had similar and would like to share information?
Grateful for any input, thanks in advance, CDreamer