Is anyone interested, like me, in gathering data IRO postcode, spread/intensity of VM, and level of support?? At time and post diagnosis?
I have taken part in questionnaires, read blogs and answered queries/concerns but never have had hard raw facts given or shared.. I would really like to work with a few like minded people to gather data from past/present VM sufferers...this would be confidential..and just on location/severity/support and then results shared as I believe there is a postcode lottery with identification/understanding and would like to prove/disprove. . There is a lot on BM, rightly so, but I personally would like to investigate this further without prejudice....
Are you Interested in finding out if whether where you live affects your level of support?
VM diagnosis
Husband affected with VM, now at home
Fatigue when talking after VM
Fatigue 7 months post VM
VM in '13
