MRI in a couples weeks. Anyone do that? 9 m... - Meningitis Now

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MRI in a couples weeks. Anyone do that? 9 months later

Sunny308 profile image
5 Replies

9 months later

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Sunny308 profile image
Sunny308
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5 Replies
IRHONDA profile image
IRHONDA

no but are you still having problems? ... you are 9months later so I would think your well on the way to getting better by now, I don't like having xrays and just for them to look at the xray they wouldn't be using me as a guinea pig ... I would be saying no ...

Sunny308 profile image
Sunny308 in reply to IRHONDA

Ya that's why I'm so scared feel weird all the time. Feel like alot of damage done

IRHONDA profile image
IRHONDA

google.com.au/search?source... you have more problems then just the vm so you really do need to follow up with this .... don't let it go .... you need to have medication by the reading of this ... please follow it up ...

kalirachi profile image
kalirachi

Hi Sunny,

I had a second MRI scan 8 months after leaving hospital because my constant dizziness, disequilibrium and many other lingering after effects from VM were still quite disabling. The doctors and neurologists had no idea what was causing these continuing problems. I'd also had ECG's an echocardiogram and a Dopler carotid artery scan which were all negative. The second MRI brain scan with Meatus (ears and ear canals plus cranial nerves) came back negative. The neurologist couldn't come up with any answers so decided it was 'migraines', yes I'm serious. Another 4 months later, purely by accident after an ENT consultant wrongly diagnosed BPPV. The Epley maneuvers they carried out on me made matters 100% worse so after I complained they carried out videonystagmography and caloric tests and discovered the virus that caused my meningitis had destroyed the left hand vestibular nerve and horizontal canals. Nine months of dedicated VRT had little effect in reducing my constant dizziness and imbalance together with a constant feeling of being concussed. I complained again to the NHS and was sent to to see a Professor of neuro-otology in Queens Square, London. This Professor had no answers, nor did he have any of my medical records which should have been sent to him from Brighton. He too, did not have any answers other than prescribing SSRI's and antidepressants but concluded that he really didn't think they'd be much help as I didn't seem either anxious or depressed! Now 30 months later I have given up realising doctors are completely in the dark and simply grasping at straws. So all the best, and I hope you have greater success.

Barbaustralia profile image
Barbaustralia in reply to kalirachi

That sounds awful for you I've had a similar time and never any diagnosis

Constant problems now my vision is blurred and lights bright and my personality is cranky used to be easy going

No doctors ever diagnosed anything but migraine and BBv as had had vertigo six years but never this - yeah they give anti depression drugs out like lollies never took them

Doctors in uk 🇬🇧 seem as incompetent as here in australia 🇦🇺

Acupuncture helped me swallow and eat again

My blood pressure goes up but medication made me unwell

Physical exercise helps me

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