Autoimmune meningitis

[Seulhe]

Hello, I feel very surprised when I read your message. AT FIRST, I had a symptom on my ear, I hear heart beat sound. and so much headache. First, my ENT doctor perscribed antibiotic for ear. But the symptom didn't go away and got worse. I had double vision. So I went to emergency and finally I had to finish up with meningitis surgery and ear tube surgery. Double vision is gone, and I received 2 month antibiotic like vancomicine and also steroid treatment. They decided as brain tumor but relate with inflammatory disorder. I was okay with few monthes, but I have new symtom like cannot keep on balance, vomiting and another headache. Now, I am in Korea and I got all the test here and my final symptom is Autoimmune meningitis. I am getting ritoximob and cyclophosphamide monthly and getting better significantly. I was taking MRI very often and it got better, worse.... but this time is getting better. I have to continue this treatment in Miami FL. I am discussing this with my ENT and nurlogy, but I am just wondering where did you get ritoximob treatmen from? Is anyone know any specialists can see Miami or any other area in FL to get ritoximob treatment??? Which doctor should I see for? Nurlogy or rheumatologist???

[TCTC19]

I’m sorry you have been through all of this but I I’m happy to hear that you are doing better. I think the medication that you are referring to is called rituximab. This is usually given by oncology or rheumatology- for different reasons. In my opinion I would see both neurology and rheumatology- they have busy schedules so I would just see whoever had an opening first. But I would assume that the rheumatologist would prefer that neurology clear you- meaning to tell them that nothing new has appeared on your MRI. I wish you the best and good health!!! Recovery is a journey so please try and patience with yourself and remember to enjoy the “good days” that you do have it helps keep you in good spirits.