Look for advice : So about 5 years ago I had... - Meningitis Now

Meningitis Now

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So about 5 years ago I had vm. Started with a headache late on a Friday afternoon, and by the time I got home from work I felt like i had glass in every joint and i was pouring with sweat while feeling so cold. I wrapped myself up in blanket and stayed on the sofa all night. Come the morning still had all the symptoms and light sensitivity had really kicked in. I remember thinking that I might actually have a proper case of the flu. I spent until Sunday night in a world of pain, I couldn't lay down, stand up, or sit. Keep my eyes open or close them. Couldn't stand any sound but also couldn't be in silence. I remember crawling on my hands and knees up the stairs to my partner and telling her to phone a ambulance. Well my memory of the trip to the hospital is a bit on and off, I do remember being asked if my headache had got better and when I said no was told I'd had maximum amount of morphine. So got to hospital, they gave me the antibiotics and stuck me on drip, and everything calmed down. I actually cried because of the relief from the pain at last. They took spinal fluid and made the diagnosis, kept me in 2 more day then released me with advice to rest for a week or two. I think it was close to month after this that the headaches and mild light sensitivity started. I'm not going to bore you with every detail but doctors sent me for every sort of scan I think there is. All sorts of meds as well. 3 doctors came back with the diagnosis "the pains just in your mind" and I cant be the only one that thinks that kinda funny, even after what I went through. Finally found a doc that had half a idea and worked through pain and anti inflammatory medications until we found a combo and dosage that let me get on with my day to day. I am constantly going back and asking if there is anything else I can be doing, I want to be off the tablets so badly, I've never liked taking them. Then someone told me about this page. I've read a few post and seen that some people have found ways to deal with it. So if any of you have some advice I would be very grateful.

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TCTC19 profile image
TCTC19

I was on steroids for a while, but I finished that about a month ago. I am in the process of starting a more holistic approach. I’m looking into starting an anti-inflammatory diet and I plan to start yoga because of my muscle spasms. Not sure if it’s gonna work but I’m gonna try it. I’ll keep you posted!

Chri5ti profile image
Chri5ti

I also found diet helps a lot. I went completely grain free and it made a big difference. It really helps with inflammation and knocks the headaches back quite a bit. But nothing takes it completely away but time. Unfortunately I am a recurrent VM sufferer so I am not sure how much time for someone who has only had it once. Some people say years and some say less. I think it quite individual. I have found that diet and a daily migraine med have been the best thing for me. I found a neurologist I love who really listens to me and that has been the best thing for me. Good luck and don't give up till you find the right combo and the doctor for you. The doctors are few and far between but they do exist!

IRHONDA profile image
IRHONDA

It depends on what gave you the vm some of us are on Valtrex for the rest of our lives as it keeps the herpes virus away, did your doctor say you could get it again? do you go to a neurologist? they are the best at dealing with this not an ordinary GP. they are hopeless, try to do a slow exercise like yoga, pilates tai chi some sort of meditation as we need to keep calm it all helps, as the meninges in our brains swell so we have to keep calm as we can ... keep really healthy ... and as stress free as we can be... ive dealt with this hideous disease since 1998 my first bout with it, ive had 4 altogether but had little minny bouts that have lasted 6 weeks just continuous headaches, but since ive been on the Valtrex I havnt had them, although just this previous month had a pretty bad minny bout tried so hard not to go to hospital as I have no back up and I didn't want to leave my 2 dogs without anyone so I battled on with it by myself, still feeling the after effects weak throbbing pressure in my head and giddy .... oh dear life sucks sometimes but we battle thru it, I will be fine soon , just be positive and hopefully you have some back up with your partner..they need to know exactly what your going thru as to understand you and your pain ... god bless :)

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