Hi everyone!

[Tortie360]

Hi everyone. I have just recently joined this group and thought I'd start by saying that I am so pleased to see so many people get together to share their experiences with others in hope that they can help each other. I too have survived meningococcal meningitis which is a bacterial form of meningitis. I am so grateful that I am alive and that I am mobile again. Like others I am still working through the after effects of the illness. With lots of positivity and support through this group, I hope that we all can get better. Xxx

[Amrita-A]

Hi Tortie,

Thank you for your lovely message and welcome! Good healing to you.

Amrita xo

[Tortie360 in reply to Amrita-A]

Thanks x

[Valorrian]

Hi Tortie,

[Tortie360 in reply to Valorrian]

Hi Valorrian.

I have just read your profile and totally understand what you are going through.

It is so frustrating to be left dealing with all the after effects of meningitis.

I have and continue to experience the same problems as what you have mentioned since I had the meningitis including going from a calm, very happy person to a really angry one. At one point I had to walk out of work due to getting so angry with colleagues over small matters which really isn't like me. Luckily my colleagues know me well and are supporting me whilst I am off work right now. I went back to work too soon resulting in this breakdown but with the counselling and other treatment on it's way I feel things may start getting better for me. You probably feel worse when people try to say positive things but believe me it helps you get through rather than getting low and depressed through negativity. My worst mistake was thinking I could get back to normal straight away. I was so determined to get walking etc again that I thought everything else would follow just like that. I felt that i made a miraculous recovery as I was able to get back to normal on the outside and look normal but the real problem was on the inside. Only when I realised that I have changed and accepted that fully is when I have started making real progress albeit slow progress. Like yourself I am going through the same procedure ie waiting for my MRI scan results, waiting to see the ENT dept and waiting for other treatment for my ears that are constantly aching, throbbing, ring and sensitive to noise. I too fear the hearing loss and know when I go to the ENT that will most probably be confirmed.

We cannot change what has happened even though it is so hard to accept but we can make life easier for us if we chose to stop the suffering by not denying any of it and instead start seeing how we can manage whats going on and move onwards. Hope this helps. Aasiya

[Valorrian in reply to Tortie360]

Hi,

Yes, acceptance is the key. That part is hard for me. I'm finally able to get out and go to the doctors. I refused for such a long time. It's time I start to live again. My only other option is go mad and I don't want to do that.