Day 11 VM

[Amrita-A]

I no longer feel that death is imminent, but I do feel like I spent time in a centrifuge. I can at least eat now, but I feel woozy, tired and over all weird. I have a vague headache, vague dizziness. My memory is shot and I can't think through complicated ideas and presentations. Last week is was in emerg and I feel so much better now, but I sure don't feel right. Are the vague symptoms the lingering effect? Can I do anything about it? How long do they generally last?

Wishing us all good healing.

[Helpman]

Hi take it easy for at least for 6 to 8 weeks on heavy lifting walks on flat ground no stairs listen to your body if it hurts stop God bless helpman

[Amrita-A in reply to Helpman]

Thank you for your reply. I actually feel worse today than I did yesterday. Is this the nature of recovery? It is almost a seasick feeling. Wishing you God's blessings, too. Last Thursday I truly thought I was going to meet Him in person!

[Starry]

Hey. Meningitis Now have a very good fact sheet on the after effects of VM which i wish Id found sooner. Apparently 83% of people reported any after effects have gone by 6 months. The survey said 10% of respondents were still experiencing after-effects 6–12 months after the initial illness,and an additional 7% had after-effects that lasted for more than a year.

Here's the link meningitisnow.org/documents...

[Amrita-A in reply to Starry]

Thank you for your reply. I will check out the link. Feeling quite terrible today and this leads me to wonder how the medical profession is when you keep going back saying that since I got sick, I haven't felt right or been the same.

I hope you are better now.

Amrita

[Starry in reply to Amrita-A]

Welcome, glad it's of use. Perhaps see if you can educate a sympathetic gp and or find a supportive physio to work with you. I'm in month 11 so am one of the unlucky 10%, perhaps because mine was immediately following major surgery for another condition. I thought I had developed ME due to the surgery. I only joined here recently as its only a talented chronic pain specialist physio I started seeing recently who highlighted that my issues might be connected to the meningitis.

I've improved massively and am working part time, but still think slowly, forget stuff and suffer debilitating fatigue and digestive issues.

Just take it really slowly try to be patient with yourself xxx

[Amrita-A in reply to Starry]

I'm glad to hear that you have made improvement. It gives me, and everyone else, hope. I feel exactly as you say. My thinking is terrible. I fill the washing machine with water but forget to put the clothing in. I put too much salt in everything. I put things on the stove and totally forget about them. The exhaustion is beyond anything I've ever experienced. It takes me ten minutes to walk a two minute walk and then I have to go lie down. My head and gut feel like I've been on a rocking boat. It seems like one step forward and ten steps back. I'm so glad you mentioned digestive issues as I am plagued with them. This is truly dreadful. I'm a danger to myself. I need to drive somewhere tonight. It is my first time driving and I'm not sure if I am really up to it. Typing is crazy. You should see the mistakes before I correct them!

I hope you just keep getting better and better.xxx

[Christinedion in reply to Amrita-A]

Please please take it easy!! If you do to much in the beginning it will only take longer (this is out of my own experience) let people take care of you! And take off work for a while if possible!! Really! Listen to books en go for small relaxed walks! Good luck and hope you will feel better soon!

[Amrita-A in reply to Christinedion]

Thank you, Christine. I walked around the corner yesterday to get my lottery ticket and even that is too much. There really isn't anyone to help take care of me. Most I can do is water my plants and care for my cats.

Thank you for your support.

How long does the nausea and vague headache and extreme exhaustion last? I really miss life!

Hope you are doing well.

Amrita

[Hidden]

HSV Mollarets meningitis was a nightmare. I'm telling everyone... Graviola tea. It worked super fast, after just a few days of drinking, all head issues were gone.

Within two weeks, all symptoms decreased.

Within a couple of months, felt pretty much back to normal. And cut back tea to one or two cups a week.

I was in so much pain for over a year and a half. Daily headaches, pains, pressure, joint, nerve, lymph and constant hsv outbreaks. No prescriptions helped. Only relief I got was when I slept.

I take a few more supplements and neem capsules and neem oil for hsv outbreak. (worked fast too, after a couple of days of using, no more outbreaks, never had another one).

Outbreak free for over two years, and pain free, fatique free, feeling great for two years!!!

[OlamanaMartel in reply to Hidden]

Is that tea from sour sop leaves?

[Amrita-A in reply to OlamanaMartel]

Yes, it seems to be.

[Hidden in reply to OlamanaMartel]

Yes, it's soursop leaves. It was a total fluke find for me.

I was researching into finding relief for my lymphnodes. It was a total shock and a nice side effect that it got rid of all my ongoing meningitis symptoms.

I did read into the study linking it to Parkinson's. But when I found information on the actual study, I wasn't too concerned. Small study done on the island of Guam, where a main staple of their diet is soursop fruit.

Plus I was at such a point of depression from the daily excruciating pain and not being able to think, my brain was not working, I was not a functioning human being anymore, and my quality of life was crap, that I would've tried just about anything. I thought anything that could help was worth the risk, what did I have to lose at that point.

[Amrita-A]

That's it. I'm getting some! xo

[Lippistix]

Hello, You can find my 28 year old daughter, Rosie S' Story, via the link on the forum stories from the home page.

We found that cranial massage worked wonders for her. Her job is working with horses on pretty much a daily basis and is very physically demanding.

It is rare for a story to be so positive and we have tried to let people know that this amazing complementary therapy worked for her. It helps release the spinal fluid which VM leaves a blockage for. Rosie is pretty much cured after around 10 sessions coupled with actupuncture, although found awesome relief after only one appointment. She is now free of all pain killers and antidepressants and feels right back to her old self.

We can only let you know what worked for her. It's not for all, but has now given amazing relief for many. It seems the success could be to do with the skill of the cranial osteopath you use. So it is important to find out the osteopaths credentials and experience in this specialised field particularly dealing with VM sufferers, if you can. (Not all osteopaths realise that this helps VM sufferers, it is often carried out on young babies with birthing problems). You need an osteopath and not a therapist who mearly has some training in cranial massage.

If you find you are getting the violent headaches and feeling lethargic and depressed after a few weeks, give this complementary therapy a go, it really could be worth it and save you being on prescribed drugs, along with months, years, of unnecessary suffering.

Kind wishes and best of luck

[Rowi in reply to Lippistix]

Hello. Thanks for the information. I too have been helped by osteopathic work and chiropractic. (My C-1/atlas vertebrae was out and this was definitely not helping things.) I could not find your daughter’s story or profile. Would you mind posting the link here. Thanks.

[Lippistix in reply to Rowi]

Hello Rowi, yes I've heard before its been a bit tricky to find my daughters story on this site. If you go to google and try.... Rosie S's Story Meningitis Now... it should come up. Let me know if this way works for you? I tried it, it should be ok.

Kind regards

[Lippistix in reply to Rowi]

google.co.uk/search?q=rosie...

Hi Rowi, this article (if it opens!) was in the news paper following Rosies successful treatment

[Lippistix in reply to Rowi]

wscountytimes.co.uk/news/i-...

Here is another link to the news paper story

Regards

Teresa (Lippistix)

[Lippistix in reply to Rowi]

meningitisnow.org/support-u...

[Rowi in reply to Lippistix]

Wonderful! Thanks so much. I have gone to about six cranio-sacral sessions so far and do feel it is slowly working. (I got sick six months ago.) Maybe I’ll try acupuncture too...