Meningitis Now
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Day 11 VM

I no longer feel that death is imminent, but I do feel like I spent time in a centrifuge. I can at least eat now, but I feel woozy, tired and over all weird. I have a vague headache, vague dizziness. My memory is shot and I can't think through complicated ideas and presentations. Last week is was in emerg and I feel so much better now, but I sure don't feel right. Are the vague symptoms the lingering effect? Can I do anything about it? How long do they generally last?

Wishing us all good healing.

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Hi take it easy for at least for 6 to 8 weeks on heavy lifting walks on flat ground no stairs listen to your body if it hurts stop God bless helpman

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Thank you for your reply. I actually feel worse today than I did yesterday. Is this the nature of recovery? It is almost a seasick feeling. Wishing you God's blessings, too. Last Thursday I truly thought I was going to meet Him in person!

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Hey. Meningitis Now have a very good fact sheet on the after effects of VM which i wish Id found sooner. Apparently 83% of people reported any after effects have gone by 6 months. The survey said 10% of respondents were still experiencing after-effects 6–12 months after the initial illness,and an additional 7% had after-effects that lasted for more than a year.

Here's the link meningitisnow.org/documents...

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Thank you for your reply. I will check out the link. Feeling quite terrible today and this leads me to wonder how the medical profession is when you keep going back saying that since I got sick, I haven't felt right or been the same.

I hope you are better now.

Amrita

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Welcome, glad it's of use. Perhaps see if you can educate a sympathetic gp and or find a supportive physio to work with you. I'm in month 11 so am one of the unlucky 10%, perhaps because mine was immediately following major surgery for another condition. I thought I had developed ME due to the surgery. I only joined here recently as its only a talented chronic pain specialist physio I started seeing recently who highlighted that my issues might be connected to the meningitis.

I've improved massively and am working part time, but still think slowly, forget stuff and suffer debilitating fatigue and digestive issues.

Just take it really slowly try to be patient with yourself xxx

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I'm glad to hear that you have made improvement. It gives me, and everyone else, hope. I feel exactly as you say. My thinking is terrible. I fill the washing machine with water but forget to put the clothing in. I put too much salt in everything. I put things on the stove and totally forget about them. The exhaustion is beyond anything I've ever experienced. It takes me ten minutes to walk a two minute walk and then I have to go lie down. My head and gut feel like I've been on a rocking boat. It seems like one step forward and ten steps back. I'm so glad you mentioned digestive issues as I am plagued with them. This is truly dreadful. I'm a danger to myself. I need to drive somewhere tonight. It is my first time driving and I'm not sure if I am really up to it. Typing is crazy. You should see the mistakes before I correct them!

I hope you just keep getting better and better.xxx

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Please please take it easy!! If you do to much in the beginning it will only take longer (this is out of my own experience) let people take care of you! And take off work for a while if possible!! Really! Listen to books en go for small relaxed walks! Good luck and hope you will feel better soon!

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Thank you, Christine. I walked around the corner yesterday to get my lottery ticket and even that is too much. There really isn't anyone to help take care of me. Most I can do is water my plants and care for my cats.

Thank you for your support.

How long does the nausea and vague headache and extreme exhaustion last? I really miss life!

Hope you are doing well.

Amrita

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HSV Mollarets meningitis was a nightmare. I'm telling everyone... Graviola tea. It worked super fast, after just a few days of drinking, all head issues were gone.

Within two weeks, all symptoms decreased.

Within a couple of months, felt pretty much back to normal. And cut back tea to one or two cups a week.

I was in so much pain for over a year and a half. Daily headaches, pains, pressure, joint, nerve, lymph and constant hsv outbreaks. No prescriptions helped. Only relief I got was when I slept.

I take a few more supplements and neem capsules and neem oil for hsv outbreak. (worked fast too, after a couple of days of using, no more outbreaks, never had another one).

Outbreak free for over two years, and pain free, fatique free, feeling great for two years!!!

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Is that tea from sour sop leaves?

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Yes, it seems to be.

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Yes, it's soursop leaves. It was a total fluke find for me.

I was researching into finding relief for my lymphnodes. It was a total shock and a nice side effect that it got rid of all my ongoing meningitis symptoms.

I did read into the study linking it to Parkinson's. But when I found information on the actual study, I wasn't too concerned. Small study done on the island of Guam, where a main staple of their diet is soursop fruit.

Plus I was at such a point of depression from the daily excruciating pain and not being able to think, my brain was not working, I was not a functioning human being anymore, and my quality of life was crap, that I would've tried just about anything. I thought anything that could help was worth the risk, what did I have to lose at that point.

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That's it. I'm getting some! xo

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