I have had VM 2,5 years ago and I am still struggeling. I am back to working 2 hours twice a week. I have to recover from everything i do. Plan en pase thats my new way of life. I am really glad i have made so much progress but It is going so sowly with ups and downs. I get sick if I do to much and my immune system is very weak. It’s like chronic fatique syndrome. I was wondering if anybody can relate and if someone has found help for this?
Chronic Fatigue: I have had VM 2,5 years ago... - Meningitis Now
Chronic Fatigue
Yes!! Same! I had VM 2yrs ago & im struggling daily. I’m only back to work 3 hours two days a week and like you feel I have to recover from everything I do. I have been diagnosed with chronic fatigue and I sleep for 2hrs in the afternoon everyday to help with energy levels. I sleep a lot but never feel refreshed. I’m afraid I’ve not found a way to overcome this but I manage it by listening to my body and only doing what I can. Days when I over do it then I get payback and end up worse and it takes longer to recover. I’ve tried everything, losing weight, clean eating, vitamins, juicing, supplements, yoga, massage, cranial sacral therapy, nothing helps. It’s frustrating but acceptance is key. I’m told by my neurologist that it will get better but I’m not sure enough is known and I think I have to accept this is the new me. It could’ve been worse and there are worse illnesses so I try and stay positive. If you find any ways to help I’d love to hear! Stay strong xx
Thank you so much for your reply! It helps to know im not the only one. I will let you know if I found a way to get over the fatique! I am off to meditation class now😉 take care! Christine
Hello, You can find my 28 year old daughter, Rosie S' Story, via the link on the forum stories from the home page.
We found that cranial massage worked wonders for her. Her job is working with horses on pretty much a daily basis and is very physically demanding.
It is rare for a story to be so positive and we have tried to let people know that this amazing complementary therapy worked for her. It helps release the spinal fluid which VM leaves a blockage for. Rosie is pretty much cured after around 10 sessions coupled with actupuncture, although found awesome relief after only one appointment. She is now free of all pain killers and antidepressants and feels right back to her old self.
We can only let you know what worked for her. It's not for all, but has now given amazing relief for many. It seems the success could be to do with the skill of the cranial osteopath you use. So it is important to find out the osteopaths credentials and experience in this specialised field particularly dealing with VM sufferers, if you can. (Not all osteopaths realise that this helps VM sufferers, it is often carried out on young babies with birthing problems). You need an osteopath and not a therapist who mearly has some training in cranial massage.
If you find you are getting the violent headaches and feeling lethargic and depressed after a few weeks, give this complementary therapy a go, it really could be worth it and save you being on prescribed drugs, along with months, years, of unnecessary suffering.
Kind wishes and best of luck