Viral meningitis after effects, mis-diagnosis? - Meningitis Now

Meningitis Now

6,769 members2,106 posts

Viral meningitis after effects, mis-diagnosis?

Ali-1 profile image
1 Reply

Hi,

I had vm in 2006 and have had a rollacoster ever since. Occipital pain, sickness, photophobia etc.. I was finally diagnosed with occipital neuralgia and had successful ish nerve blocks. It was decided I would have radio frequency treatment instead as this may last longer and allow me to be meds free, and allow for pregnancy. This we did and after 3 months difficult withdrawal I was meds free for the first time in 8+ years. Then it wore off, I have been waiting for treatment for over 8 weeks now and will get radio frequency on Dec 1st. This time the pain has burned more and I have lower neck pain, cracking, bouts of server sickness, poor sensation down right arm and numbness in hand. GP is great and very supportive and refered me, this takes soooo long. Has anyone e!se experienced similar?

Written by
Ali-1 profile image
Ali-1
To view profiles and participate in discussions please or .
Read more about...
1 Reply
sopie profile image
sopie

I was dx years ago. I went thur Immunigoblin infusions for 3 months. I haven't been hospitalized since. I had some 15 - 17 admissions some lasting 2 was or more. I was only in ICU about 5 times. I am very interested in your treatment. Would you mind to share more info on this

You may also like...

Viral Meningitis- After effects

Hi, I am Dave and live in Sydney Australia. I had VM last April 2017 and it took me 6 months to...

Viral meningitis after effects

year and I am still nowhere near recovered. I have bouts of severe headaches which can come on very...

Long term after effects of viral meningitis

I also still suffer from extreme fatigue and now have anxiety. I was on Amitriptyline for years but...

Viral meningitis after effects

Hi, I had been diagnosed with Viral Meningitis in Aug-17. Everything is OK now except sometimes I...

INSOMNIA - after Viral meningitis

4:30am becuse for the 5th night runing i have not had any sleep. but im not sleeping int he day. im...