Does anyone live near or in liverpool in th... - Meningitis Now
Does anyone live near or in liverpool in the uk who has reacurring meninjitus ?
Hi I've had meningitis twice and live in Lancashire
Hi,
I have had it twice now my-self but nobody can tell me why. I have also been left with tinnitus with constant screaming in my left ear. I discovered on my second bout that I now have a brain tumor also ?? apparently its been there for quite sometime but at least its benign. I now have regular Brain scan's to make sure its not getting any bigger.
I'm not that concerned because its quite a common type, (Meningioma) so at least its not cancer.
If only they could tell us all why we have this recurring sickness.
Hi , i had my fourth recorded bout of the virus in April I developed a tiny rash again no bigger then my finger nail and had headaches , a swab was taken although the doctors were convinced it was nothing. The results came back live shingles and live meninjitis I took aciclovir 5 times a day for 5 days and then went back on Valiciclovir. I am left with side affects and am waiting to start on the chronic disease programme . I am off work now as last week I started with very strange sensations in my lower back , bottom and thighs . My skin feels like it's burning and like pins/ needles constantly. Again I was told to take the above medications and have also been given a tablet that desensitises the nerves. I am fed up with nobody having any real answers to why this keeps happening. X
Hi it is now March 1st 2016 and I am recovering from meningitis again . Officially the fourth meningitis attack but the fifth attack of the herpes virus which seams to be the cause of it all . The last one was two years ago I think .
I went to see my neurologist 3 weeks ago and also my consultant at the infectious disease clinic in the royal Liverpool hospital two weeks ago . They were both happy for me to continue with my half tablet of valiciclovir until August then stop my meds completely and discharge me in September and now this the bloody virus has struck again. this has been a severe attack so I have been taking aciclovir 800mg tabs five times a day for ten days with tramadol, neurogenic and paracetamol for the pain. Today is the first day I feel better . No pain , YAH !!!!!!! 😊 I am exhausted , agitated , very low mood and also very angry . I thought there was light at the end of this very long tunnel.
I am waiting to hear from my consultants with the nest step.
I have no energy and find it a complete struggle to motivate myself as all I want to do is hide and sleep .
One of the worst things for me is the lack of understanding from some people who are supposed to be my friends . It's ' pull yourself together , we are all tired ' I am sure you can all relate to negative comments .
I don't come on here very often but I just felt miserable and was compelled to write to people with the same problem and with those who understand .
Thank you for reading .
Christine x
I am sorry to hear about your most recent attack. My last hospitalization was 7 years ago. Since then I started taking Acyclovir when I had flare-ups, but eventually became allergic to it about 2-3 years ago. I found that acupuncture, craniosacral therapy and taking Lysine regularly helps me manage the symptoms.
I think people just don't understand the toll it takes on a person, so they think you should just be able to suck it up. It is exhausting dealing with it and I understand you frustration and anger.
I hope you feel better soon.
Thank you so much . It is a good feeling knowing people understand . I am off work for one more week then on the 21st back to the grind and all the questions from the doubters . 😳 Take care .
Sorry about the miss spelt words ie: neurofen not neurogenic . My eyes are very painful to light so I'm wearing sunglasses inside . 😎
