Is it true that 3cm meningiomas don’t cause symptoms?

[Broccolli]

Hi everyone I’m new here and am hoping for some advice. I have a 3cm left parietal meningioma and was placed on watch and wait. I have headaches and issues with my balance and vomit regularly- especially in the morning but the doctors said these types of tumours do not cause symptoms and it must be to an unrelated issue. Is this true? Anyone else had a similar experience and found a solution? I just want to feel well again.

[Lytham]

Hello I had a 3cm meningioma and it was making me dizzy, I also had headaches but my consultant said it wasn't causing those, they were probably due to stress.

I suppose it all depends on the position and what it's pressing on.

Good luck, hope you get things resolved soon x

[Prairiehill]

I had the same size meningioma in same location (left parietal) and many of the same symptoms. I recommend that you get an opinion from a good neurosurgeon that specializes in brain tumors. Chances are very high that your symptoms are caused by the meningioma. I waited and watched too long before having surgery and it almost cost me my life. Best of luck.

[Broccolli in reply to Prairiehill]

Hi Prairiehill thanks for your comments, it’s so helpful to hear from someone who has the same thing. How are you now? Did you need to have surgery in the end? And if so- did this help resolve your symptoms? Sorry to ask more questions!

[Prairiehill in reply to Broccolli]

Yes, I had surgery 9 months ago. While it was no picnic it went very well and I was in the hospital for only 3 days. I was fortunate to have a great neurosurgeon. Since surgery I have been free of all symptoms and back to normal. All that lies ahead is a follow-up MRI in 2 years to check for any regrowth but I'm told that the chances of that are minimal. Hope this helps.

[Broccolli]

Massively helpful, thank you so so much. I’m really pleased to hear you’re back to normal 🙏

[Tumour149]

Hello BroccolliI was diagnosed with a 2cm meningioma last year after dizzy episodes and headaches. Thankfully I have an excellent neurology team. Given your uncertainty a second opinion might indeed be helpful.

Wishing you all the best 🙏

[Broccolli in reply to Tumour149]

Thanks for this TumorM-2021. I appreciate your feedback. Hope all is well with you x

[Pvik]

I just got on here to talk about the same thing. I only have a 15 mm parasagittal meningioma and I have been sick for 6 weeks. It is right on my superior sagittal sinus and I have constant pressure in the top of my head but am told they don't think it's from my tumor because of the smaller size. I also have ear ringing, balance issues, and I want to throw up pretty much all day, I get a migraine type headache about every other day. Anyhow, I'm seeking a 2nd opinion and had my primary doctor put in a referral to me for a neurosurgeon who specializes in meningioma and is also an ENT. I am suspecting that the tumor is affecting my middle ear and I'm not listening to the the fact that they think I can't feel something half the size of my thumb pushing into my brain. This is affecting my everyday life so I'm hoping to find hope. Don't give up and if you don't feel comfortable with waiting then get a 2nd opinion. I am sick everyday and I want answers. I hope you get them too if you can.

[Broccolli in reply to Pvik]

Thanks for this Pvik. I’m sorry your having the same experience, it struck me that the neurosurgeons have never asked for any history or symptoms or even completed a basic exam. They seem to rely on the scans only. I will ask for a second opinion. I hope you get better care and the symptoms begin to ease soon. Best of luck and thanks again xx

[Alli1 in reply to Pvik]

Hi I don’t know the size of my tumour yet but it’s definitely causing me vertigo symptoms amongst other things. Apparently I have had a Meningioma since 2017 even though I was told my MRI was clear! Apparently it hasn’t grown since then but I’m now mistrusting of information.

Did you request a second opinion from your GP?

I live in the Yorkshire area

Thanks

[Quiltingrammy]

I spoke with my NS’s nurse, after the NS read the latest MRI. I have daily headaches, some as bad or worse than any migraine I’ve had. Some nausea. They said several things. If I want it out now, they will take the two of them, they can refer me to a neurologist who specializes in brain tumors and headaches, and…I can watch and wait. While each of us are different, Ive decided to at least go the summer before I really consider surgery’ unless something new occurs. I declined the offer to see another doc for the headaches as they are mostly manageable and I didn’t want to add another medication into my world. There is no right or wrong answer. Hope this helped. Reading others thoughts and ideas have really helped me. Best of luck.

[Broccolli in reply to Quiltingrammy]

Thank you so much for sharing your story. It’s really helpful to hear from others.Good luck xx

[marceag1]

I had a 3cm meningioma and I also had headaches and the doctor told me the same thing. But when I got it removed the headaches went away. Good Luck!!!

[Broccolli in reply to marceag1]

Thank you Marceag1 this is really encouraging to hear. I really appreciate you taking the time to respond x

[Broccolli]

Massive thank you to all who responded. Your comments are so helpful and I’m so grateful to you all x