Hi , I am a Mum to a beautiful young lady(23) who happens to have learning disabilities. Looking to the future I really what her to gain independence and she also is very keen for this. I just really don't know who ,what or where I go to get her supported living. I was offered social services support early on due to her disability but refused as saw ss in a bad light.So my question is can I get funding for her to have supported living ? Where do I go for this .And how does it all work.
I would be really grateful for any advice support on this as I am at a total lose .
Thank you 😊
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Ted8
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hi your daughter would need to be assessed by a social worker then they would discuss what sort of care she would need and what sort of provision they would then no doubt give you a booklet so you can go and view homes to see what and where you would like. Also always check their CQC rating on the care quality commission website. I have a private advocate who’s independent I pay her but she’s so knowledgeable I feel she’s worth every penny I pay her with my sons benefits. If you would like her details I am more than happy to share them with you if that’s of interest and she is always happy to point you in the right direction one way or another. Good luck in your journey whatever you decide my only advice is get a deputyship for finance and health for your daughter you can do it on the gov.uk website and you want a local place for your daughter where you can keep an eye on things and pop in and go unannounced sometimes as well just to keep them on their toes.
Jofisher can I ask why you recommend to get deputyship for finance and health? I am at the first stages of accepting that my 21 year old LD/Autism/Tourettes daughter needs to go in to supported housing so am trying to research/find any information on the process for the parent/carer. We have a good SW and LD support team who will refer but I have no idea of the pros and cons of it. I am her appointee for UC/PIP and manage all of her money although she has a bank account for her spending money. I am also her appointee for Health/dr's etc. Does the specialist housing provider automatically take over this role when they move in? I have so many questions I cant find any information on what the parents/carers need to do or prepare for in the process, or even what the process is! I live in Cornwall and supported housing is rare and I believe has a waiting list of up to 2 years, but I like to be prepared and would like to know what battles and challenges we will face for the eventual move. I am meeting our SW next week so praying she has a handbook of everything you need to know but not 100% convinced one exists lol.
We also have a wonderful 23 year old daughter with learning disabilities. She moved into supported living 7 weeks ago and it’s going really well.
We discussed supported living with our social worker probably a couple of years ago and this was the 2nd property we viewed. There are 3 ladies who live in the property and 3 ladies in the neighbouring property. The care company and carers are great. We have heard so many bad things and bad situations but so far our experience has been positive.
This is what I worry about for my son who has Asperger Syndrome, he is 31 years old and I want him to be independent but I am worried in case he is placed somewhere where there are other adults who have drink/drug problems, Ben is very easily led and I wouldn't want him in an environment like that.
I understand your feelings re social worker intervention. That was exactly my thoughts when my daughter now age 29 was a child. My perception of social services due to the media was that social workers were for problem families and additionally they may also interfere in the parenting style of normal loving families.
It was only through chatting to her specialist health visitor at the time, that they reassured us and informed us that a social worker would enable us to get extra support,inform us of benefits and point us in the right direction for services.
She referred us to children's services and we didn't look back, our first social worker after assessing her needs, enabled us to send our daughter to an after school club, get extra support on a weekend and sumner playschemes which gave us a well needed break. Later on we were also able to get 6 weeks support through the short breaks services. When the social worker changed when she was about age 10 the new social worker was the nurse at the special school she attended who had re trained. She was with her for 10 years until her transition to adult services.
The social worker we had when under adult services also advised us to reapply for health funding, so it was her intervention that enabled us to get better support package in the community and to continue short breaks.
As you can see social services are necessary if you want her assessed for supported living or in fact any care in the community. They do get a bad press, but on the whole are there to work with families, to ensure that our loved ones can get the support and provision they are entitled to.
Going through this too for our 27 yr old son who has a learning disability, but who is independent in many ways but vulnerable. I still hold out hope that something will come up that is suitable for him and where he feels comfortable, but in the meantime I have launched this, to try to create something new and a bit radical... it's a mountain to climb, but I am climbing it.
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