DCD Dyspraxia

[DanielleW]

My 19 yr old daughter has just been diagnosed with DCD Dyspraxia. She works part time but struggles in almost every area of life. Im looking for help & support for her as she's often lonely, anxious & exhausted. She is relieved to have the diagnosis as she now realises why she struggles so much. She's highly intelligent & such a lovely person but dcd is very challenging for her. Any DCD social groups/support network out there for her? Advice much appreciated

[Jofisher]

Try the carers association for support for you and they will have lots of contacts also mencap helpline the help point at your local council. Also try your local voluntary services as they will have many contacts because they work with many charities. Try them to start with and see how you get on good luck

[learner01]

The Dyspraxia Foundation might be helpful.

[Ilovecows]

Hi So The only thing that I know about is. To talk to dyspraxia UK and you can get OT’s to do video call They might write to your doctor to get you a NHS specialist OT but my advice would be to get a needs assessment from the social workers it’s very hard to get Proper assessment sometimes they Try to fob you off to save money but I would try get evidence if they try to fob you off make sure you get evidence to prove what they’re doing Hopefully You won’t need to worry about that

so after a needs assessment You Might get something called a personal budget that is money to pay for care that you need because you’re saying that they struggle a lot in their life it sounds like there disability is severe Hope you don’t mind me saying that. That’s what scope told me about my disability so I would expect you to definitely get some help.

if you get a personal budget I would recommend using some of the money to get a private OT. It’s harder to get a NHS OT. I would say try get a nhs ot but it might take longer. So you could try to get a nhs OT a and a private OT at the same time and see which one you can see the quickest.

It’s hard to get private OT as well in my experience private OTs are very busy so it’s good to be as quick as you can I’ve had a mental health OT Before I would not recommend getting a mental health OT if you don’t have mental health Problem because from my experience When you tell them some of the things you struggle with they turn everything your saying into like they say so I no your quite worried about how much hand cream to use instead of been like because of your disability you struggle to know amounts of things to use like how much hand cream to use how much milk to use on your cereal. I would definitely not recommend a mental health OT because My mental health OT did a report from meeting me one time and they said that my problems with my hands don’t stop me doing anything and that’s wrong. They said the report is a snapshot of meeting me one time It’s not very helpful You need someone that can get to know you well.

It’s really important that the problems you have because of your disability are recognised properly because it can lead to doctors and people Reading reports from the OT and then saying you can do something you can’t do and that you’re pretending and it’s mental health That’s your problems instead of seeing that you have real problems I have been in that situation and it is horrible. Doctors and professionals try to get away with telling you that you don’t need help that you can do things you can’t do so you really don’t need people saying the wrong things about your disability.

you need somebody that’s experienced in dyspraxia And you need to if you can Tell them how you struggle with things And make sure they listen to you.

So I have a disability and I’m not sure what is okay to say I’m just trying to be helpful I don’t know how to say this but if you’ve got money already I would say try get a dyspraxia specialist OT as soon as you can and ask them if they know about any other help you can get I would also recommend talking to scope the disability charity and dyspraxia UK I’m not sure if there’s anything else I hope you find this helpful ❤️

[Ilovecows in reply to Ilovecows]

If you want to send me a message on here you can 🙂

[lecsmum in reply to Ilovecows]

Dyspraxia often is found with Autism.

[Ilovecows]

I been waiting a very long time for autism assessment

[PassionateWriter99]

Dear Danielle,

I've just read your question and I know you posted it 10 months ago, so you probably already have some support, but I can really recommend the Dyspraxia Awareness group on facebook. I've had Dyspraxia my whole life (24 yo now) and was diagnosed at 3 years old and even though I've always known, it didn't decrease the challenges. And having a group of all ages, mainly adults, to talk about those struggles, get advice, share personal achievements in terms of Dyspraxia, sometimes get a new perspective on a situation, has been really helpful. I hope you and your daughter are doing well. I wish you a lovely day and if you have any more questions feel free to personal message me.