help for my daughter: i need help. my daughter is 2... - Mencap

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help for my daughter

joejoe72 profile image
16 Replies

i need help.

my daughter is 28 and she wants supported living.

I have attempted to contact social services over the last 12 months and they just keep telling me there is no availability.

She is desperate to move out now.

I have found 3 places that have had availability but when I speak to social services the have not sent the assessment/care plan and then the places have gone.

I have put a complaint in over 5 weeks ago and we have still not heard anything.

Don't know what else to do.

any advice would be appreciated

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joejoe72 profile image
joejoe72
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16 Replies
Jofisher profile image
Jofisher

I would get her an independent mental capacity advocate they can fight her corner and yours or get yourself a independent consultant social worker they are worth there weight in gold.

joejoe72 profile image
joejoe72 in reply to Jofisher

Thank you. Will look into it.

Staffielover3 profile image
Staffielover3 in reply to Jofisher

Hi do you have the name of an ind social worker if so can you forward details to me please.

Jofisher profile image
Jofisher in reply to Staffielover3

07843171686 Vanessa Evans

Iolo profile image
Iolo

Hello,

I sadly think lots of people who wish to move on are not being heard by their local social services but this is not acceptable. She is entitled to a copy of her assessment so I am shocked she/you do not have a copy. She/you could make a subject access request to the council for this, I would also wonder about raising a safeguarding for neglect and/or approaching Citizens Advice Bureau and/or a solicitor. With regards the complaint you could explore escalating it to the Ombudsman lgo.org.uk.

I hope there is something that seems useful in that list. Good luck to you both.

BenjiB profile image
BenjiB

You do not have to house her so you may need to tell them that you’re not prepared to anymore. They’ll avoid spending money where they can.

sl20 profile image
sl20

Hi I had a similar situation with my son, a new supported living house opened which had rooms available but social services just weren’t responding. In the end out of desperation I wrote to my mp who took an interest and its amazing how quickly things then started to happen. You also have to stress how important this move is for you. Ie you may need to work more hours but can’t due to your caring role etc. unfortunately you need to really stress all the difficult reasons you might want your daughter to move out. I said I wanted time alone with my husband. To be a mum not a carer, and to be able to work and earn more money. This is on top of all the reasons such as learning to be independent that your daughter wants. The social workers need the request for supported living to be seen as a need not a want! Good luck.

1946timmy profile image
1946timmy

That’s interesting to me , I have a 45yr old son with Autism and my Charity has built a house for him and 2 others to share, and 2 one bed self contained flats, these are supported living. They have been available from jan this year for people to move into. We were told there was a need for them. So far no one from social services as put anyone forward to live there. My thoughts had been they may not be telling people about our property as they don’t have the money to pay for them. Your experience and others is making me think that is the problem!!

joejoe72 profile image
joejoe72 in reply to 1946timmy

Where is the property. The problem I feel is in my area, there are not enough social workers at the moment.

1946timmy profile image
1946timmy in reply to joejoe72

Is in Guildford Surrey. I think we have the same problem as well. Not enough social workers , not enough money. All very frustrating.

Suzzichka profile image
Suzzichka in reply to 1946timmy

Hi Timmy,Would someone at the charity be willing to give me some advice as to how they set up the house for supported living or could you give me the name of the charity? We want to do the same for our son but I’m struggling with knowing what health and safety laws I have to adhere to. Fire officers won’t come out until it is set up and running which is obviously a little late 😟

1946timmy profile image
1946timmy in reply to Suzzichka

Hi our property has been built by a Charity that I founded. We ran a Charity shop to raise the funds to build it.Some years ago we made contact with someone in our local council who helped us find a partner with land. We also had support from someone in our county council. He is the senior commissioning manager with a lead in autism. So he was a great help.

The property is finished and ready to move into but now Social Services don’t appear to be so helpful finding people to live there.

My only suggestion at the moment would be trying to find people in your council/ social services who maybe able to support /advise you.

What exactly are you thinking you would like to do for your dinner?

Mybestfriends profile image
Mybestfriends

Mention Duty of Care, Someone has to have this responsibility to your Daughter, Her Needs Wellbeing etc that she needs to learn the Independent Living skills, to be able to move forward, this is So important when approaching Adults. Your Needs too time alone with husband, work money etc. Seek Occupational Therapist Assessment they can help with Housing issues too.

TBDavid profile image
TBDavid

Your vulnerable daughter has a right to independent living.Has she been in the SEN sector from school age, or just recently diagnosed?

If from school age, she should have an Educational Health and Care Plan EHCP. It goes up to age 25. But, should give you a history of her needs to fall back on.

Due to the cuts in Social Services budgets by the government, her needs may have been downgraded as lower priority.

But, that is no reason to give up. Continue to chase the duty Social Worker.

Focus on the more difficult side of having her with you (getting older). For her and for her as an vulnerable adult entitled to supported living.

joejoe72 profile image
joejoe72 in reply to TBDavid

Thank u. She has had sen since a young child and now attend a specialist day centre .

TBDavid profile image
TBDavid

Also, both you as parents and she as an individual need separate advocates.

Request and copy in these advocates on any communication between you and Social Services.

The local Carers Centre is usually a good place to start.

Good luck.

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