CARE COMPANY LETTING DOWN MY SON AGAIN

[Tracidu]

My Son attends a farm run by the Salvation Army 2 days a week for Learning disabled adults, he started going back there after a 16 month closure due to covid ,. Due to his severe learning disabilities and challenging behaviour he cannot attend unless he has one to one support.

He had an financial assessment before covid from a social worker who had never met him and does not live in our county, so knew little of the services available here which is not a lot , she messed up his whole care plan which had been in place mostly successfully for 12 years because she couldn't agree an £8 cost with his previous provider so they pulled out of the contract, I think she argued to much with them, The company phoned me and said they were sorry to loose my son but they couldn't agree with this social worker and couldn't run at a loss .

She found another agency which ironically is £15 more expensive.

Since they have worked with my son they have let him down on 4 occasions in the last 6 weeks which means he couldnt attend his days at the farm . There was no apology just a matter of fact phone call to me . I have to yet again cancell the farm and his transport . Sorry I'm just letting off steam because being without support for 16 months on my own has been so hard but more importantly my son has been so isolated it's been heart breaking which I know a lot of LD have felt the same . I thought that as things were opening up for the rest of society it would get a little better , but more upsetting is the fact no one really cares and have no concept of what it's like for LD or thier carers when they let them down , I really wish I didnt have to rely on others to give him a life and he was excepted at daycare places without the one to one support , I am constantly worrying about his future . does anyone advise that I should phone social services about this company as they recommend them . I don't want him left without support as it took 2 months without support last time to sort it out ?? Sorry again to rant , I cant believe I'm like this after 37 years of caring , nearly 4 on my own . Thankyou

[SpeedyH]

I agree with you that you should phone social services and get this sorted. In an ideal world they should have checked in with you to make sure that the new arrangement is going well but that isn’t likely to happen. Perhaps firstly phone the old provider and ask whether, in principle, they could resume providing a service to your son. Then write down all the dates when he didn’t get support or there were other problems with the new provider. Armed with this information, then you could phone social services and say that your Care Plan was changed on (date) and the new arrangements are not working with your son being left without support, and ask for an immediate review of the new arrangements. If the old provider will work with your son again, then you can say you want to return to that arrangement, or if not, you can ask for a new provider.

There are certain things that social care might not fund in your area, like food at a placement, or transport during the placement as some expect these to be paid out of disability benefits. You don’t say what the extra £8 was for but if you want to return to the old provider, it might be worth asking social care whether the charge, if you pay it yourselves, could be classed as Disability related expenditure that could be offset against his care charges.

I hope you get it sorted, change isn’t always for the better.

[49Twister]

I Agree with all SpeedyH says, it’s just easier said than done. I involved my social worker back in May to get the company who support my son to support him in the areas he needs it. Still nothing has changed, meetings constant emails, still nothing has changed and it’s the end of September. What do they all do with their time!!! Obviously waste it at our expense, just disgraceful. You do really need to let social services know the situation, and I hope your more successful, but your right, does anybody really care.

[StocktonLass]

You're allowed to request a new social worker.

[Tracidu in reply to StocktonLass]

I never have the same social worker for my son . My son is banked and I only see them when he has a financial assessment , our council hires in social workers from other parts of the country to do this,I have been intouch with the SS about his care company letting my son down on numerous occasions and was told he's due a financial easement , so going around in circles as usual .

[monicanatova]

does edubirdie work? papersformoney.com/edubirdi... yes, their authors are as professional as they mention in their disclosure.