Hi, my daughter had her 1st vaccine and had a seizure approx 9 days after. She has Epilepsy but it is usually well controlled with her medicine. I'm wondering if anyone else has experienced this happening? She has significant LDs and Autism and is 38 years old.
Seizure after pfizer vaccine: Hi, my daughter had her... - Mencap
Seizure after pfizer vaccine
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cautiouscandy
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I am so sorry to hear that. It is a very worrying time as little is really known about the side effects of the vaccine. It is a growing body of data. My brother (54) had his first tonic/clonic seizure 16 hours after his first dose of Astra Zenica. The side effects from this vaccine (fever and flu like symptoms) are known to bring on seizures. The medical professionals involved in his care have acknowledged this.
Please make sure that you report it - I used the yellow card system. Unfortunately there is little reported on main stream media about the side effects and risks to vulnerable people.
My best wishes to you and your daughter.
Thank you so very much for your response. Did your brother get a fever also after his vaccine? I do hope he is okay now. My daughter had no raised temperature, following her vaccine, that I was aware of, she seemed completely okay otherwise. Neither did she appear to have a raised temperature 8-10 days post vaccine when the seizure occured. I believe that time-period is when the vaccine peaks in the body, regarding the immunity protection it starts to give. Fortunately she has recovered completely - seemingly. I do worry that the second dose could give her a worse reaction, due to an increased accumulation of the vaccine in her body. I did report it via the yellow card system. Thanks again. If you wouldn't mind answering my question that would be greatly appreciated.
Hi, I will let you know when I am back on my feet. I am still very tired. I have lost my driving licence because of the seizures : -( so I am a bit fed-up! As you probably know it can take a while to recover from a seizure - especially when you haven't had one for a while. I hope she is okay.
Hello. My non epileptic 16 year old daughter had her second Pfizer vaccine in September 30! Started having “black out” episodes where she doesn’t remember anything for about 3 minutes, gets very red and hot! The worst one was the day before Thanksgiving. Then came Monday after Thanksgiving, November 29th! She was in school and had a full blown, 7 minute long, grand mal seizure! Had EEG several days later which was abnormal! Now diagnosed with epilepsy!!! I find it too coincidental! Thoughts???
Hi there, yes it seems too coincidental to me too. The more I read the replies I have had here, the more I feel there is a real risk in the long term to some people, with seizures following vaccine, ie not just that someone may have one seizure episode after a vaccine but that the seizures can be ongoing. That 7 minutes must have felt like an eternity, though as you say your daughter was in school so you weren't there to witness it I gather.
Please keep me posted, if you will, on how things develop?
Wishing you and your daughter well and good things for 2022.
Hello, How is your daughter doing now? my son got his first ever seizure within a week of getting a booster. I hope this doesnt happen again.
Hi there,
I also hope this doesn't happen again to your son.
My daughter is okay thankyou, there's seems to have been no decline in her mental capacity. She has not caught Covid despite not having a third/ booster vaccine. But she doesnt go out and about a lot due to her learning disabilities so that lessens her chance of being in contact with the virus. She has required an increase in her daily anti epilepsy medicine and she gets quite shaky hands which may be due to many years on meds, she will be 40 next month and has been on anti epilepsy meds for around 28 years now. She also has meds for asthma which have needed to be given since 2020.
Wishing you and your son well, I would like to hear how he gets on, if that's alright with you.
Good Luck and Good Health to you and your son
😊
Thank you so much! I will keep you posted. So far no medicine was prescribed. All tests came back normal ( but from what I am reading that is not unusual).
So sorry to hear this happened to your daughter. My daughter, aged 18, also has epilepsy, a chromosome disorder and learning difficulties. I was very worried about seizures being brought on from her having the vaccine, but she was fine (she also had the Pfizer). My best wishes to you and your daughter and I hope she is feeling much better now 😊
Thanks, so good your daughter was okay. Best wishes to you both.
Hi, I have epilepsy and am usually we'll controlled. I had my pfizer vaccine in Feb and a seizure 3 days later, followed by a mild episode 3 weeks later. I had my second vaccine in May and 5 days later had a seizure. A further 3 weeks later I had a mild episode again. I am going to report it on the yellow card scheme,l.
Hi there, thank you so much for telling me about that. I found that very interesting. Do you feel okay now and back to normal? I do hope you have recovered well from those episodes. I was extra wary of my daughter having her second vaccine due to what happened to her after the first vaccine. Your post-vaccine seizure experiences are very near the same as my daughter's. When she was almost due for her second vaccine I got in contact with a doctor and asked for a temporary increase in my daughter's anti epilepsy daily medicine which was eventually agreed to, but I had to be persistent to get that prescribed for her. She has had a small amount of extra daily med for 7 days prior to the second vaccine and is taking the temporary med for a further 12 days post vaccine. She had her second Pfizer vaccine on 1st June so yesterday she was at the stage when she had her first seizure after the first vaccine. Fortunately, so far, she has been seizure-free so I am hoping that the temporarily increased med has saved her the seizure experiences she had after the first vaccine. Its good that you are reporting your experiences via the yellow card scheme. It annoyed me when the doctor I was consulting with, was stating that the vaccine is shown to be safe for those who have epilepsy. I felt like it was being doubted that the vaccine could have any bearing on my daughter's seizures - I had explained that there was nothing else going on that could account for her seizures and that ordinarily my daughter's epilepsy is very well controlled. Thank you again for your reply. If it's no trouble I would like to know if you have recovered alright now and if things are back to normal for you ie keeping seizure- free again. My very best wishes to you.
After reading everyone's responses i finally feel like im not going insane. Glad I found this page x
my son had a tonic seizure 5 weeks and 6 days after his first pfizer. He has epilepsy, however he only ever had one prior seizure. His epilepsy was well controlled with a low carb diet. He had a clean eeg 7 weeks prior to the vaccine.
Thank you for telling me about that. Its interesting that the prior EEG was fine. I hope your son is well again after the seizure. Again quite a similarity to my daughter's case. Fortunately she has been fine, so far, after the second Pfizer vaccine she had (on 1st June) but perhaps only because I asked for a temporary increase in her daily anti epilepsy medicine to cover a three week period around the time of her second vaccine. If there is going to be a further, booster vaccine which I've heard there may be, then I would want her to have the temporary med increase again. I still get nervous though when she has the doses. She went 16 weeks between vaccines, as opposed to the recommended 12 weeks, because I had to spend quite a while in getting the help from the GP to get a temporary increase in my daughter's daily med. I didn't want her to have the vaccine without that temporary med increase. One size doesn't fit all with the vaccines, it seems. I feel let down, on my daughter's behalf, when it is quoted that the vaccine has been shown to be safe for those who have epilepsy.
Thank you again for your reply to me, that is very helpful. I do wish yourself and your son all the very best. Take care
🙂
I have started my son back on a MCT ketogenic diet. He did this diet for 3 years and 4 months after his first seizure in 2016 when he was 14 years old. He never had another seizure and never took any meds. Two years ago he switched to a low glycemic/low carb diet and eliminated the mct oil. So I was pleasantly surprised when he had a clean EEG in March of this year. I was expecting some epileptiform activity because he had not had MCT oil for over a year. However he is now back on the MCT oil and we are increasing other fats. He is scheduled for his second vaccine on July 4th and I am very worried because in Canada there is currently a pfizer shortage and they are giving people Moderna for their second vaccine (even if they had pfizer for their first vaccine).
Oh gosh, I can understand your concern. You have done a marvellous job for him from the outset from what I can gather, you seem a good mum indeed. My daughter started her seizures at around the age of 14 also. I had never heard of the dietary intervention at that time, she is 38 years old so a more natural approach for health matters was less widely known then ( when she was 13 or 14). If you'd like to keep me posted that would be interesting to me. Best wishes x
I am 36 and had a massive grand mal 4 days after my Pfizer.
My autistic son who turned 17 today also just started having seizures a little after 2 weeks of the second Pfizer dose. He now has epilepsy.
I'm sorry to hear that has happened to your son. Thank you for posting that information and I do wish you both well.
Thanks! This is a total nightmare! He had 13 spinal fusions before this and he had his final spinal fusion July of 2020 and I thought the nightmare was over. It has now started again. These are grand mal seizures now! I feel destroyed. We have cut down on his sugar intake, pasta etc. He is eating healthier and slowly introducing the keto diet. I'm not going to force my autistic son to eat food he doesn't like all at once and take away everything he likes so drastically. With having autism as most know they only like certain foods and only eat them. He has been more open as he has matured which is good so his seizure medication seems to be working and his diet is better and that helps. I'm still angry though. My father is a doctor of microbiology and virology and the former Dean of a highly accredited medical school and we have fought my son's entire life about certain vaccinations I don't like so here we are!
Sorry...I had to change my user name.
I wish there was something I could do or say to make this all better for you and your son. I do feel for you both. I think you are wise to introduce new foods at a gradual pace. My daughter has recently had 3 seizures in one day which has never happened to her before, that happened despite an increase in her daily anti-epileptic medicine about 2 months prior. She is shortly due to have her booster Covid vaccine which is definitely going to be declined. Fortunately she is otherwise her usual self physically and mentally and I'm massively hoping that her seizures will not increase anymore.
I'm not quite sure what or why your son has spinal fusions, they are something I'm not familiar with. Do they help him or are they just investigative procedures?
Best wishes to you.
Please consider putting your son on a low ratio ketogenic diet. Contact Mathews Friends in the UK
Read above. Thanks!
So sorry to hear this!
Thank you. I'm really upset.
My husband had a seizure ten days after the second pfizzer dose- never had a seizure before.
That must have been a shock. I heard that the second Pfizer vaccine dose can cause worse side effects than the first Pfizer vaccine dose but it is the other way around with the Astra Zeneca vaccine.
I hope your husband has recovered fully and that there are no repeating seizures for him.
Sorry to see this. My son also had his first seizure I believe 10 days after the second Pfizer vaccine. My son has had it rough since he turned 3 years of age. He has had 13 spinal fusions so this is just the cherry on top. It is a nightmare.
Hugs to you both. Please keep us posted on how he’s doing!
Hi Hunny007After your husband had the seizure did he experience ongoing issues? If so what were they and how long did they last?
My son (34) had a seizure 10 days after the second Pfizer shot and spent 5 days in hospital having tests. They sent him home but he still isn’t well - head feels stuffed with cotton wool, blocked ears, random pains, profuse sweating and no energy.
It’s been a month now .His wife is beside herself as they can’t get answers.
Thanks for your time .
Hi, my 14 year old son had his covid and flu shot on Wednesday and had a very nasty tonic clonic seizure yesterday; his epilepsy is usually well controlled.
Hi there,
Thank you for letting me know about that.
I hope I don't upset you by saying, I feel angry that your son was put at risk like this, having two shots together. It seems that what was said all along, that two vaccinations, eg for covid and flu, should be a fortnight apart, has gone out of the window when it suits the "System". So the two shots are now being given together mostly.
Have you reported your son's reaction via the Yellow Card Scheme?
I hope he recovers well with no lasting side effects. If you dont mind would you keep me posted on how he recovers in the longer term? I would bear his progress in mind in case my daughter is put in a position where this is what the medical profession want to do. Actually it was what they wanted to do recently but I refused the booster Covid jab for her because of her previous reactions to both previous Covid jabs so she just had the flu shot. I felt pressurised from those in question so I had to stand my ground.
hi there, i am so sorry to hear about your daughter's seizure. i hope she's doing better now. im 22 with no history of epilepsy & i had a tonic-clonic seizure about a week after my first jab. i still got the second dose but honestly i think ive been having partial seizures since. to be fair, i do have EDS which lowers the seizure threshold, & i might have diabetes because when i was having the grand mal seizure mal, my blood sugar was 200. honestly surprised i didn't die from the grand mal cause it happened for quite a long time for a seizure & since i didnt have prior history of epilepsy & my local hospital is terrible, they treated it like a mental health issue & strapped me down flat to a table while i was unconscious/convulsing. i could've choked on saliva or the blood from the hole i bit thru my tongue. also since they treated it like a mental health issue they never performed an EEG or diagnosed it, even though the EMTs explicitly said it was tonic-clonic. (i dont remember the ambulance ride at all but my mom told me that. but since it was never properly diagnosed, sadly i cant report it to the yellow card thing.) take care
I just posted about my 16 year old daughter (read below) she also has EDS!
Hello, I agree your hospital is terrible. I would be inclined to put in a complaint for the choking risk they put you in during your seizure. They need to be bought to account for that. I'm not aware that you need a diagnosis to report via the yellow card scheme. How would you feel about pursuing and getting a diagnosis for the partial seizures that you mentioned? That should provide you with some, hopefully, beneficial treatment.
My daughter is doing okay but is now on increased anti epileptic medicine which doesn't seem to have affected her badly ie with side effects. She has put on a bit of weight though which may be caused by that medicine increase. Cognitively she doesn't seem any worse affected from the seizures she had, following vaccination and somewhat ongoing. Thank goodness for that as she has quite significant learning disabilities to start with...
I don't know what EDS is, could you enlighten me?
Best Wishes
I am so sorry to hear that. My daughter aged 19 had her 2nd Pfizer/flu jab together and 3 days later, had increased seizure activity and has become very aggressive and this has carried on throughout. My daughter has severe epilepsy, severe autism and severe learning difficulties. I am not sure if it was having the 2 vaccinations together that has caused this ongoing problem or it is from the 2nd Pfizer jab? I am very reluctant to let her have the booster as god knows how she will react!
Hi there, I share your reluctance about your daughter having the booster. It seems particularly risky to me to give 2 vaccines at once. I am wary when the thinking previously was that two vaccines, ie Flu and Covid, should be given 2 weeks apart then it is changed to 2 vaccines together being "okay". It is "okay" when the desire is to get as many people vaccinated as quickly as possible and it seems, 'never mind the casualties'. I hope you don't mind my anger. I think the second Pfizer jab is said to cause any problem more than the first dose but I may have that the wrong way round. The opposite was said to be true of the Astra Zeneca, I heard. I hope your daughter is recovering. With best wishes.
My 24 year old son had very well controlled epilepsy- no seizures in almost 4 years. Had j and j vaccine with no problems. Had Pfizer booster and suffered seizure 3 weeks later. Doc refuses to believe there is a correlation. Maybe I’m grasping at straws but I think it could have caused it. Praying he can become seizure free again.
Hi there, Doctor's are so loyal to the "cause", I have found. I do wonder if that loyalty would wane if it was their son or daughter.Do you feel up to reporting this via the yellow card scheme? I reported my daughter's reaction and they seemed very grateful to know, saying it is helpful to get to know about reactions. I too hope your son can regain being seizure free. I will keep my fingers crossed for you both.
Thank you for your comment. I would like to report it. Such an anxious time for him.
Hi, you sound like a very caring parent by relating to your son's anxiety.It has just been bought home to me how it is not so rare that people other than my daughter are experiencing a reaction(s) after Covid vaccines - I can see this because I just saw that I have had 31 replies since I first posted my daughter's reaction 8 months ago, I didn't realise it was that many replies.
I don't know if I mentioned to you or to someone else that I declined my daughter's booster for Covid 19. She has had a flu jab without any known reaction which I went with this year because she had it last year and was okay then. I decided that because she has Asthma. My daughter is unable to make such decisions herself due to mental incapacity.
Here's wishing you and your son some calm and soothing times soon.
I had a gran mal seizure that lasted about a minute about 15 minutes after my first Pfitzer shot. Doctor advised me to not get second shot and see a neurologist. EEG and brain MRI came back normal. I'm a 47 year old female and do not have epilepsy. No symptoms since.
I'm pleased that you have no ongoing after effects. Best wishes
Hello, May I ask how are you doing now? My son got his first seizure a week after a booster. All tests came back normal. He never had any issues with headaches, balance, blacking out before. Thank you !
My daughter is 17, absent seizures, tonic clonics and photosensitivity. we had been travelling along really well until her pfizer vaccines. She had 2 tonic clonics exactly 1 week after each Jab. She was lucky to have one tonic clonic a year and always between 4-5am in the morning.Now they are unpredictable, normally lack of sleep or forgetting meds is her trigger. but now its all over the place. She is our water baby and despite her condition I have never worried about her in t he water, but on the 10th Jan 2022 she had a seizure in the surf (she was with friends) and nearly drowned. The most traumatic event for all of us, except her as she never remembers the episodes, could be a good thing. She was very lucky that day. Angels were watching over her. The. other side is she gets tired easy and had a nap prior to this event. The Dr has said never to let her sleep more then 45mins to an hr as that could be tricking her brain into thinking its early morning. So we have been doing this but my gut feeling is that its linked to this vaccine. Its just to coincidental.
Thank you if you read my story, I just wanted to share xxx
Oh dear Jadey I'm sorry to hear of your daughter's experiences and increase in seizures. Yes I feel suspicious too that the Pfizer vaccine has triggered these things for your daughter. Are you in Britain so you can report this all to the Yellow card scheme?Thank you for letting me know about your daughter as it is interesting to me because my daughter had problems, since her two Pfizer vaccines, which have settled but she has needed her daily anti epilepsy medicine permanently increased and she now gets substantial shakiness in her hands which can be a side effect of her medicine.
I hope things settle well for your daughter and please keep me posted of any progress if you are able to do that.
With best wishes.
We are in Australia, but I do need record on a similar platform here.
Good luck with everything
PS I should have guessed where you are, we dont have much surf in Britain haha
Hi my son is Autistic and has learning difficulties he had his booster covid vaccine on Tuesday and 43 hours later gas a huge seizure lasted 6 mins never had one before?!! Was unresponsive for 20 mins afterwards, he was in college and fell from his desk hit his head got a black eye and broke his glasses. Now i strongly believe it is the Pfeizer vaccine that has caused it! His 2 previous vaccines were Astra Zenica. I am his carer and have had all the vaccines with him even this Pfeizer one aswell. Yes ive reported it today to the yellow card. There is an angel looking after my son as after the huge seizure hes had no ill effects and is tge same boy. ❤️
Hi Brynrhian,
I'm so glad to hear your son has had no ill effects after his seizure and I do hope it stays that way.
That was quite a while for him to be in a seizure so I'm very pleased he is not suffering any further. And I do hope you're right about the angel, bless your hearts to you both.
That is very suspect that there were no ill effects following the Astra Zeneca yet only 43 hours after the Pfizer your son has a huge seizure.
My daughter had two Pfizer vaccines but following problems after both, she did not have a booster. The problem after the first vaccine was a seizure. She has epilepsy anyway but that had been well controlled until the vaccines. I got a temporary increase in her anti epilepsy daily med for the second vaccine and she was better than after the first, in that she had no known seizure after the second vaccine. However she had a strange episode, after the second vaccine, when she was very cold with her skin being in a cold sweat. She had not experienced such a thing before and hasn't since fortunately.
I don't know if the temporary increase in daily anti epilepsy med was helpful at all as I later found out that it is unknown whether that and the vaccine could interact together, so that any seizure risk from the vaccine could be prevented or lessened by the anti epilepsy medicine.
If I was to change my mind and say I wanted my daughter to have a booster vaccine I would definitely refuse it if it was to be the Pfizer.
With best wishes.
My 10 year old son had his Pfizer vaccine yesterday and had his first grand mal seizure about 10 minutes after. There was no real warning. He was chatting and sucking a lolly when he suddenly said he didn’t feel well and then it all started. Nothing like this has ever happened to him before. I’m hoping it’s a one off but now have doubts over whether to allow him to have his 2nd vaccine.
Hi there, I would feel disinclined to let my child have another Pfizer vaccine given what you say. Ten minutes after the vaccine and such a thing has never happened before seems 100% to be the vaccine as the cause. I hope your son is okay and doesn't have any repeats of his unfortunate experience. I wonder if this would have happened had your son had the Astra Zeneca or |Moderna vaccine instead?
Have you reported this via the yellow card scheme, if your in Britain, or a similar scheme if you're in another country, particularly as your son had the grand mal seizure so soon after the Pfizer vaccine was given.
I'd be interested in hearing how things proceed, if that seems okay to you.
Best wishes
Thank you. He seems to be fully recovered now. I did report it via the yellow card scheme. I have spoken to the gp and have decided for him not to have the booster. The gp said that he thought it was very reasonable for him not to have the booster.
Hello there,
nice to get that update from you. I'm pleased you have a GP who is understanding as they can so often defend the vaccines fiercely from what I have gathered. People don't seem to be so uniform that one size fits all and there seem to be some casualities where the vaccines are concerned in light of giving them to all for the greater good. Those arent necessarily my opinions, just how it seems to be.
My daughter has not had any boosters due to the problems she had with two Pfizer vaccines. She doesn't do well with masks due to her Autism and learning disabilities so I try to protect her indirectly by wearing a mask myself in public places. I tend to use the FFP 2 masks which enclose the mouth and nose more, so they are more protective therefore. I think they are called FFP2, some combination of Fs and Ps and a number 2!
I'm very pleased also that your son is fine now and has no long term after effects I gather, that is brilliant. Thanks again for your reply.
I'm trying to reply to Courtney 2000, who has replied to me but I cant get to view the full msg. I really want to respond because her daughter has passed away and I want to express my condolences at this very sad situation. I hope you get to see this Courtney 2000 as I want you to know my thoughts are with you.
I’m so glad I found this my son 2.5 got his second dose of Pfizer on Thursday afternoon and Saturday at 5am had an almost 1 hour seizure. He has never had one before they are now trying to tell me it is because he was born at 24 weeks but I feel as though we would have had one before or noticed something before. This seizure came out of no where he was perfectly fine before and was back to his normal 2.5 year old self the same night.
Hi there,
I totally agree with you.
It makes me suspicious that the medical profession defend vaccines so vehemently and ignore what can be as plain as the nose on their face.
As for your son being prone to a seizure because he was born at 24 weeks gestation, well I would have thought if that was so then he would have had a seizure before he got to 2 and a half years old.
As the saying goes, 'A man will always believe what his salary is dependent on him believing'.
I hope this is a one off for your son, personally I would avoid the pfizer vaccine for him in the future or avoid vaccination completely for COVID 19.
I hope you don't mind my honest opinion there.
With best wishes
Absolutely agree, sorry to hear all you've been through, first seizure & or ongoing or not, they should via Yellow card info, warn Epileptic's, Carer's of these findings/experiences, could only be due to Pfazer Vaccine. Dr's really push for us to have these Vaccinations, but they Need to be informed, so don't be put off, tell them any symptoms & do Report to Yellow Card. There are too many with the same or very similar experiences. My 33yr Son, ASDc, DD, LD, D, Mental Health issues Schizophrenia, didn't feel right worried about the Pfazer booster, but couldn't explain, but i know he does have Muscle weaknesses here & there, but never had a Seizure, he wanted to stop being Vaccinated & he wears a Mask out Shopping etc.
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