Posted yesterday about adrenaline surges and 2 people kindly replied which was helpful.
Trying to accept and understand our condition. I’m not especially into Facebook but put an interesting post up to share about how it feels to have ME.. don’t think I know how to get it on here! Anyway my husband is very into Facebook , posts stuff a lot, especially political. He always gets lots of replies. I was surprised and disappointed that only 2 people took the trouble to comment or share. If either of us had posted something happy, my husband especially would be inundated with likes, comments !!
Message of course demonstrates the danger of Facebook and I personally don’t like it. Only stay in it for any photos my daughters may put on, particularly if grandchildren.
But... feel it shows that people don’t want to know about something like ME. Either as it’s not pleasant or more concerning that it’s dismissed as an indulgent self obsessed , maybe even imagined condition!
Like the plumber who saw me laid out and said ... ME isn’t that’ guppy flu and laughed!!!!! 😖