Which sunscreen do you use? (Please share your ex... - LUPUS UK

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Which sunscreen do you use? (Please share your experiences in the comments section too)

Paul_Howard profile imagePaul_HowardPartnerLUPUS UKβ€’β€’212 Voters

Please select all that apply:

58 Replies
β€’
Barbara28 profile image
Barbara28

Always use sunsense, do find it it doesn't run in very well. But it's works well.also use p20 which is also very good.

MrsM1988 profile image
MrsM1988

I used to use uvistat but very thick and noticeable on my already pale skin. Sun sense loads better goes on well and does the job perfectly.

Tazuk profile image
Tazuk

Use suns ensue daily face but not available on perscription

Spicer21 profile image
Spicer21

I haven't voted as I haven't been diagnosed with lupus...am currently being investigated for it. I have terribly sensitive skin and photosensitivity. I use Greenpeople Scent Free Sun Lotion SPF30 which works well for me. (I used Le Roche-Posey 50+ last year and it made my face swell.)

pixiewixie profile image
pixiewixie

I get Le Roche - Posey on prescription.

Hullsue profile image
Hullsue

I get mine on pescription from my doctor and I ask for the rollerball ones - they are great to keep in your bag and you can reapply really quickly when out and about

esky profile image
esky

Sunsense f50 on prescription and also Ultra Sun - which is soon due to be available on prescription! Both really good, both my top and only choice due to sensitivity 😊 x

molly19 profile image
molly19

It works good with me sunsense factor 50+. Prescribed. To use all year round.

eriLu profile image
eriLu

Vichy ideal Soleil SPF 50 UVB + UVA

Smartcar profile image
Smartcar

I use Neutrogena SPF 100 and sun sense factor 50

FunkyMumma profile image
FunkyMumma

I was tested for allergies because I went as red as a beetroot with Dermatologist prescribed sunblock. The culprit was the parabens they widely use in commercial sunblocks. If anyone can tell me of a high factor, tinted, cancer-chemical free sunblock, I would be happy. I have sub-acute Lupus and Jessner's Lymphocytic Infiltrate - which up until recently was described as an 'atypical Lupus rash' - until I agreed to yet more biopsy scars on my body, for it to be defined. Frankly, they could have diagnosed it 18 years ago when they started hacking chunks off my skin, and were heard to mutter 'Jessner's' (which is on the Lupus spectrum of disorders). So, I am interested in this poll to see if anyone has found a sunblock that doesn't have nasties in it - look at the labels folks.

flo_IarFachYrHaf profile image
flo_IarFachYrHafβ€’ in reply toFunkyMumma

Sorry to hear so many troubles...

greenpeople only go up to factor 30. I've only discovered one "natural" one at more than 30 and am considering trying: Lovea Organic SPF50 Daily Face Cream.

I just cover up. sunsense daily face 50 that I use has parabens and sometimes tingles me - so would not recommend. I cover up and stay in or have umbrella as well as cover up in middle of summer/day.

flo_IarFachYrHaf profile image
flo_IarFachYrHafβ€’ in reply toFunkyMumma

just seen your other post below. if there are no creams strong enough and medication doesn't lower sensitivty to light, that is the option i.e. dress like a muslim...or thereabouts. Nobody gave me any advice, but fortunately Ma & Pa make and design clothes so I have a sun protection cotton fabric sewn into long sleeve blouses, long dresses and skirt... I have scarf over head, workwear glasses and sunprotection buff or scarf over face... or if cooler: bamboo hoodie, baseball cap and buff over face but eyes can get sore, and vision restricted a little

Hobnobbing profile image
Hobnobbing

I use La Roche-Posay. Unfortunately it only comes in small tubes but it sinks into the skin unlike the Sunsense I tried at the start. Has anyone had any luck using any of the once a day type sunscreens?

FunkyMumma profile image
FunkyMumma

Forgot to say I am prescribed Uvistat Factor 50. I use it on days when I have an urge to look like a Giesha Girl. My ex-Dermatologist told me to dress like a Muslim in head to foot covering. Just shows how much she actually cares. I sacked her and moved on to someone with more practical advice.

Sayyar profile image
Sayyar

I use Sunsense sun sensitive cream 50+. Find that you only have to use a very small amount and really have to rub it in otherwise you are left with white marks on your skin.

Ellenkay55 profile image
Ellenkay55

Quite happy with Sunsense and it's available on prescription. I also use Boots Soltan Protect and Moisturise Face on a daily basis as a moisturiser.

-Jill- profile image
-Jill-

I've clicked what I used to always use, but nowwa days I use none as I like to sit in the sun for about 45 minutes to aid the raising of my Vit D3, then stay shaded ~Jill~ X

Paul_Howard profile image
Paul_HowardPartnerLUPUS UKβ€’ in reply to-Jill-

Hi -Jill- ,

The advice for getting vitamin D from the sun is to be out in the sun daily for short periods with forearms, hands or lower legs uncovered and without sunscreen. A short period of time in the sun means just a few minutes – about 10 to 15 minutes is enough for most lighter-skinned people – and is less than the time it takes you to start going red or burn. Exposing yourself for longer is unlikely to provide any additional benefits.

I would not advise anybody with lupus to expose themselves to the sun because of the risk of inducing a flare. I would recommend getting a test for vitamin D and calcium levels from their doctor and bring prescribed a supplement if needed.

-Jill- profile image
-Jill-β€’ in reply toPaul_Howard

Thanks for your advice, I will take note, my vitamin D is at present very low 38 nmo/L not sure which calcium level you mean I have serum calcium which is at 2.5 mmol/L

Thanks Paul_Howard

Jill.

Kriss53 profile image
Kriss53

I get this on prescription.Works for me.

noodles1 profile image
noodles1

Neutrogena sfp 100 its brill

Tre123 profile image
Tre123

I also use neutragena face sunscreen which is spf110 and rubs in really well. Available on amazon

homemaker profile image
homemaker

Inspite of wearing Sunscreen 50, I have sun spots. Is it normal? I am on plaquenil.

dgleds profile image
dgledsβ€’ in reply tohomemaker

i have sun spots too, but my Mom also had them...Might be a family thing?

homemaker profile image
homemakerβ€’ in reply todgleds

True! My mom had them too. Mine are new... Was Recently diagnosed with maybe Lupus & started Plaquenil. Seems like coincidence as it makes you photosensitive.

dgleds profile image
dgledsβ€’ in reply tohomemaker

I was on plaquinil, but not now....I think i started to notice age spots in the last 6 years....My Mom was darker skinned than i but had age spots. I'm fair skinned, and of all the things i could inherit from her, i think that's what is :(...I have them on my legs that never see the sun...big bummer! I also have one on my face, which i hate!!!! Things seem to happen over night after menopause...or after 55 more...

homemaker profile image
homemakerβ€’ in reply todgleds

Thank you 😊

I am going to get a second opinion from a Rheumatologist & will ask about this...

heatherevans28 profile image
heatherevans28

Sun sense factor 50. Face one is tinted and works well with make up, and normal one is great for rest of my body. Both on prescription which is brilliant πŸ˜ƒ Xx

MrsNewfy profile image
MrsNewfy

I use Alpha H factor 50 because it's not too heavy & greasy.

New47 profile image
New47

That's my choice, to be honest my eyes are so painful and photophobic I'm becoming a owl or a cat these days and prefer to be in the dark. Sad but true!

LittleDoe profile image
LittleDoe

I use Neutrogena SPF 50 spray with Helioplex. No mess on your hands, just spray on and it soaks in without being greasy. I keep it with me at all times.

Paula1968 profile image
Paula1968

I use Piz Buan For allergy. I find it is great

fabwheelie profile image
fabwheelie

Uvistat 30 It's a bit thick and white when appplied but this helps see that you have not missed any areas. I get it on prescription from GP as I already pay a pre paid prescription card charge for my other meds the sunscreen doesn't cost anything extra.

Travelor profile image
Travelor

My Dematalogist recommended I use Banana Boat SPF 50 kids Sunscreen lotion and elta/MD skincare SPF 30+ for my face.

Travelor profile image
Travelor

My Dermatologist recommended Banana Boat SPF 50 Kids suncreen and for my face elta MD skincare SPF 30+ Broad Spectrum.

flo_IarFachYrHaf profile image
flo_IarFachYrHaf

I use the sunsense daily face 50+ for face [have used their sensitive, not specifically face, very sticky!] Sunsense ultra 50+, or previously mentioned sensitive, for fingers and ankles. Don't go out not covered up with clothing, except very dull days in november & december, but like to have face cream for indoors.

The uvistat I had on presecription did not agree with me - besides being very very sticky.

flo_IarFachYrHaf profile image
flo_IarFachYrHafβ€’ in reply toflo_IarFachYrHaf

ps sometimes I can't use sunsense daily face because my skin starts to tingle - I give it a break and then ok. If in allergic to everything mode then can't use.

MaximumRide profile image
MaximumRide

I get it free on prescription otherwise I may try another one.

weg1 profile image
weg1

i stay out the sun and wear a wide brimmed hat and cover up

Shadows-walker profile image
Shadows-walker

Nivea protect&senstive 50+ reduces the risk of sun induced allergies, extra water resistance. It's a children's one .

Neiluk75 profile image
Neiluk75

I use sunsense. One for the face and another one for the body. Both on repeat prescription 😎

willowwag profile image
willowwag

P20 is far the best

dgleds profile image
dgleds

I stay out of the sun, because the heat makes me feel ill...I don't use the high sunscreen the doc wanted me to use, because it was horrible and hard to spread...On my arms if they are exposed i use suntan oil with spf, which i can spread real easy...On my face i use nivea nourishing day cream with spf 15, but i dont go in sun too much...If i do, i go out super early...and im covered with light clothing...

BonnieSue profile image
BonnieSue

I use Coppertone Sport High Performance Accuspray Sunscreen, Broad Spectrum SPF 50 UVA/UVB. It stays on when you sweat. It doesn't run into your eyes. Water resistant for 80 minutes. I can get to my own back because it's a spray. I spray it on my hand to apply it to my face. This stuff WORKS! I live in Florida where it gets a tough test.

tenn profile image
tenn

The sunscreen I use isome very thick and it makes me look like a goste

Heatheric profile image
Heatheric

I use Nivea, but not the one listed. It is Nivea Moisturising Sun Lotion 50+ very high. It works for me - I use all year round every day in the UK - and it also works very well when I'm on holiday in Turkey with temperatures of 25+ degrees.

knitsandie profile image
knitsandie

I use Boots soltan 50+ for babies. I bought it last year too and am happy with it. I've also tried Eucerin 50+ sun creme and tinted face. It is in a very small bottle 50ml and about Β£12ish but I found it useful on holiday instead of foundation.

Marley profile image
Marley

Piz Buin after sun (in a blue bottle) is incredible at soothing sun rashes. It even works on insect bites! Totally recommend it.

lina61 profile image
lina61

Unfortunately i have not ever been able to find one i wasn't allergic to.Would love to find one which would agree with me.

Kristen64 profile image
Kristen64

I use Ultrasun for Face and Body which is excellent for sun and heat sensitivity.

Dalilatm profile image
Dalilatm

Hello! I use: Eau Thermale Avène SPF 50+. Very High Protection.

As my skin is ultra, super sensitive, as made of paper and this brand is perfect for that kind of skin.

KRutherford profile image
KRutherford

I am avoiding the chemical mixtures and using products with titanium dioxide or zinc oxide as the active ingredient. I have used Banana Boat baby 50 spf for everything but my face. I found it too heavy on my face and now use Neutrogena sensitive skin sunscreen spf 60 for my face. Don't know if these products are available in the UK or just the US. I didn't recognize some you listed.

Loutob profile image
Loutob

I use Superdrug factor 50

Had sunsense found that to greasy

Megan89 profile image
Megan89

I use ultra sun it's great for sensitive skin and prickly heat, I'm interested in trying sunsense now Iv been diagnosed with Lucas

Lionroar profile image
Lionroar

Sunsense is fab. Not too greasy.

Dan30cr profile image
Dan30cr

I use any child's factor 50+

JMarshall profile image
JMarshall

Hello,

I have subcutaneous lupus and SLE, it started with lesions on my face and significant hair loss... I have many other issues but need advice as going on holiday for the first time since diagnosis and would like advice on what sunscreen to use to stop the lesions coming back... thankyou 😊

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