How did you find out about our HealthUnlocked site? - LUPUS UK
How did you find out about our HealthUnlocked site?
547 VotersPlease select one:
Great site very helpful to all lupus sufferers.
I'm glad to hear this.
im so glad u have this sight u feel like ur the only one but its really helped x
I'm glad that you find it helpful. You're definitely not alone.
Great not to feel so isolated.I am already finding out more about recommended medications as i have been on the receiving end of the pill popping suggestions.So once again,a very helpful contact.
Found out through the Web,thank god.Great share info available without feeling like an alien.Wonderul.
nice to know there are people to help and can do so because they are actually living with the desease as well - this site is invaluable for first hand information and feadback from others
Wow i cant believe i have never been aware of this site, it has been so helpfull and given me some hope to, its so nice to share with people whom know how you feel, for even our doctors dont know exactly how we feel, well i dont hink they do , and my experience is i dont always feel as though iam being listened to so to here people have felt that to its grt to know iam not alone so a big thank you to all whom are involved in this set-up.... Mo...
Hi mojo,
I'm glad that you've found the site and that you think it is a useful service. We are very pleased with the amount of positive feedback that has been received regarding it. I hope it continues to be of help to you.
thank you paul for all your help getin me on to this sight....
I totally agree, i have had lupus and fybro for a very long time, and still get really frustrated with docs who just nod in the right places, a fantastic site!!!
I found this via the Raynaud's & Scleroderma HeathUnlocked site, which I am also a member of.
I am finding everyones input so helpful and mentally it makes me feel a little more sane to know I am not on my own.a big THANKYOU to everyone.
Hi its a great site the biggest help to me is getting things off my chest and having somebody to answer who knows how i feel. Thanks to all
I am glad that I saw the link on FB today. 16 years down the line and still trying to get my head around it.....
Thank you so much for this fantastic site, it has been my life saver. I cant say how much it has helped me.I always feel so lucky when someone kindly shares their ups and downs with me. And to be able to share my own experience in the hope it may help a fellow sufferer....
This site has given me hope knowing i am not on my own anymore,,yeah friends and family try there best but only another lupie sufferer really understands..and thank you to the people that already helping and posting to me ,,and its only my 1st day,,thankyou so much.
very reassuring,knowing there is OTHER people out there with the same disease.
Thank you so much to the wonderful people that left me feedback about my hairloss, you have given my the courage that i needed, stay safe and well, best wishes
What a great site! This will enable all lupus sufferers to get advice and speak to other sufferers who understand what their going through.
Hi everyone I just found this site through google, it's a great...
I suffered an attack on my kidney's in 2010
I had 2 treatments rituximab. And am on mycophenolate since 2010 and feel remarkably well.
I use to have a lot of pain in the past. There were times I couldn't pick my son out of bed because my wrists were so weak 
this was in 2006. In 2010 february I was treated in hammersmith hospital and am very thankful to my doctors that treated me.
I still have mild pain but it's bearable.
PLEASE DON'T FEEL HOPELESS! There is always hope TODAY!
Thanks Lupus Health Unlocked for the informative DVD and booklet for people who have been recently diagnosed with Lupus. i received this approx 2 weeks ago and myself, my partner and mother have found this very useful and helpful. i will also be taking this along to my next Consultant appointment for his perusal. Thanks again, Lulabelle x
I'm glad that you found the DVD helpful. It is always good to hear feedback. Thank you.
Paul - how do I obtain a DVD? I would like to show this to my husband...... Thanks
You can order them from here - bit.ly/z0Jffw
They are free, but we ask for £2 to help cover postage and packing.
Thanks I have ordered a couple to give to family..
Found this through Vasculitis UK and Raynauds and Scleroderama on health unlocked sites I am a member of both of these
I saw some leaflets in Supermarket, and chatted to some volunteers from Lupus UK. It was only then that I wondered if my symptoms were connected to SLE and arranged a blood test to confirm this.
I am so glad I found this sight it has been very helpful to me. I have been diagnosed for over 30 years and this is the first time I haven't felt so alone.
Hi
I found this site through health unlocked, Hughes Syndrome/Aps site.
Only just joined and still on the edge of diagnosis. Have been reading through blogs n questions and found lots of useful info, another great site. Thanks so much!!!
Take care gentle hugs Jessielou xxxxx 
the website appeared on something i was searching for, not sue if it was on Med line or Pub med - something like that
I am so happy that I have found this site. Thank you for creating it
The HealthUnlocked directory! Looking at the stats on our community, I'd say most people come from our website, NHS Choices and google searches.
I stumbled across your site by accident recently and have found it really interesting to read some of the other comments and leave a few comments of my own which I hope have been helpful. Great site.
I cant really remember how I found it but probably via a link from another forum or google search
Some of the so called "Specialist Consultants" could learn so much from peoples comments and advice on this site !!!! I am far more confident with the response and advice from fellow Lupies than the Medical experts - of course l still go to Hosp appts, but have gained more knowledge from this site than any Drs. Thank you Paul for all you do and everybody who comments
By web search, I was looking for lupus blogs.
By accident on the web.
Would like to go straight to what I searched for!
Lupus support group
I was looking on line about steroids & came across it
Found it on the internet after what was thought of as RA, and through the Arthritis UK site. Not been here long, but it's brilliant!
I really don't remember. It was either Facebook or more likely I was searching the web for support and to find out more about Lupus
Internet search on a lupus topic of interest to me
