Do you suffer with memory loss and/or headaches? - LUPUS UK
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The headaches totally knock me 4 6 as most of the time NOTHING helps. If it is a full-on 'Lupus/APS' headache I just end up going 2 bed until it passes. The longest 1 has gone on 4 is 3 weeks 
The headaches are the worst i hate them all my headaches respond to painkillers i.e cocodomal but they are just so bad and i will get them once a week at least, and as for the memory loss thats a funny matter but its terrible i dont take anything to get rid of that and my partner and my mother think im mental lol.
Steroids are the only thing that help mine. Have you tried prednisone for them?
I won't touch steroids. I can manage my headaches well now. i took amitriptyline for a while (which helped for about 8 months). Now thankfully, I don't get them as often but when I do, they are generally more migraine (with vertigo) than a headache & I now take Malat tablets for them, which do the trick 9 times out of 10.
I have headaches, l have one now, and yes memory is a problem, sometimes l can not remember what l have had for lunch, which worries me
when I was having bad headaches the neurologist suggested that I stop taking the strong cocodamol ie 30/500 and instead to take 8/500. the codeine appeared to make the headache worse. I feel better now. if one can avoid the codeine completely that's better .
Hiya all, I suffer with excruciating headaches & memory loss. My Pharmacist recommended Forehead, which is a stick that you rub across your head & works wonders for me. It does not interact with any medication & so is safe to use for us Loopys !! As for memory loss laughter is my medication otherwise its just embarassing. Good luck xXx
Memory loss is a much bigger problem than headaches for me at the moment. When having a conversation its normal for me to completely forget what I was going to say if the person I am chatting with takes longer than expected to finish their sentence.
I also forget to do things and forget what day it is.
A couple of weeks ago I had a really bad headache which I couldnt shift but found that I had high blood pressure at the time. Once that was normalised the headache shifted.
Steroids are known to cause memory loss. Also, when SLE affects the brain. Even the stress of having lupus can cause memory problems...Anyway, I do have memory loss.
I get so lethargic. its like bad jet lag, my brain stops working and I feel so tired with the heavy headache and eye strain. I just have to go to bed for 3 or 4 hours. Then my mind is clear and my headache gone
Recently diagnosed with acephalgic migraines which have some hideous symptoms that for me might be related to photosensitivity from lupus. Went to 4 specialists before I got a diagnosis. Goes to show you that the best advocate for your health is you.
