Do you have a good relationship with your Rheumatologist?
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The lupus unit at st thomases is not properly orgainised iv seen 3 different rhuemys since being registered there last year july so i dont really have any connections with them because havent seen them long enough.
I was think about going to the lupus unit at St Thomas's. Is it any good? Has it helped you at all? I know they're supposed to be better and have more knowledge about Lupus.
They have great knowledge of a number of things not just lupus but it can get quite busy and thats why you dont normally see the same rhuemy as meant to
I must be really lucky, I have been seen at my local hospital, Rochdale Infirmary since 2002 and diagnosed MCTD. Last year my symptoms escalated and I was diagnosed with CNS Lupus. In all that time I have only ever seen Dr Bowden, the consultant or Meryl, the nurse specialist. For my neuro symptoms I see Dr Gosal at Salford Royal and him and the rheumy work together and share care
I feel really fortunate too, I attend the lupus clinic at Queens Medical Centre Nottingham, where the whole team is excellent. They are easy to talk to, nothing is too much trouble, caring and compassionate, and, best of all by far, I am believed, whatever symptom I complain of!
I see the same Consultant at each appointment which is really good at St Lukes in Bradford. My Consultant is excellent - but the Rheumatology Nurses and the Rheumatology department is nothing to be desired at all!
They are no good at follow ups after u have seen the consultant and apart from 1 nurse who is lovely they couldnt care less. I dread to think how I my condition is going to be managed - waiting to be put on Methotrexate could be waiting 8 weeks to be seen even tho blood work done 3 weeks ago to start meds.
Sometimes think it would be easier to sell snow to the Eskimo's lol.
Treatment and awareness of Lupus is seems so much better in America.
Hi the consultant I had for approx. 20 years Dr Patrick at North Manchester Gen was excellent a real gent and I had confidence3 he has left trust now no one appointed!
I did but he retired! Since my lupus settled down after a special protocol my doctor used, I'm trusting my situation to my PCP. I haven't had a major flare in awhile, but there are no rheumatolosists I trust in my area...
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