That time again! : With all the... - The Roy Castle Lu...

The Roy Castle Lung Cancer Foundation

5,884 members3,520 posts

That time again!

LewLew19 profile image
5 Replies

With all the coronavirus going on we were certain that mums scan would be delayed, however it went ahead as planned last week.

We’re awaiting the results, so we’re just going through that horrible time of anxiety. Mum had a great scan last time, a partial response so we’re hoping things have continued to get better. Then there’s the niggling doubts about whether treatment goes ahead due to the virus.

Looking at her hospital and what the trust have said, they are planning to proceed with treatments, possibly at different location away from the hospital. However, until that is confirmed it’s just another worry for us to deal with! I really hope that if mums treatment is delayed, then we can resume the treatment at a later time. If her scans show she responds then I’d hope a few weeks/month or so delay wouldn’t undo all the progress made!

Anyway, lots on uncertainty as I’m sure everyone is feeling. Can’t wait to give mum a big hug. Thankfully she’s really embraced FaceTime so it’s not so isolating.

Hope everyone is keeping well.

Take care x

Written by
LewLew19 profile image
LewLew19
To view profiles and participate in discussions please or .
5 Replies
jillygirl profile image
jillygirl

Sending good vibes to your mum. xxx

Swimdown profile image
Swimdown

Sending positive thoughts to you all. FaceTime is such a comfort at this difficult time.

RoyCastleHelpline profile image
RoyCastleHelplinePartnerAsk the NurseRoy Castle

Waiting for scan results is always an anxious time LewLew. Lets hope you don't have to wait to long for the treatment plan. Your mum is very fortunate to have your support. It's good that she has embraced FaceTime to keep in touch with you. One of the good things in life is a loving cuddle,you can send her a virtual one!

If you need to talk to someone please don't hesitate to call our helpline nurses 0800 358 7200(option2).(9.00-5.00pm Mon- Thursday 9.00-4.00pm Friday.

Kind regards,

All the Roy Castle Helpline support team.

JanetteR57 profile image
JanetteR57

it can be a worrying time anyway but disruption to services by covid19 making it moreso. however it is a waste of emotional and physical energy to worry about things beyond our control so worth keeping your mum distracted/occupied with conversations of things beyond her illness as much as possible. Something we've done with family on FaceTime is to ask others to create something - a drawing, colouring, grow a plant, craft or similar and show us its progress. I know it's a little thing but it can put some 'purpose' in activity. glad you're able to engage via social media. I think there will be a lot of hugs going on when this is lifted... good luck to you and your mum

LewLew19 profile image
LewLew19

I think the lockdown has been easier for mum as everyone is limited to their movements to a certain extent. Makes it less obviously directed at her/others with underlying conditions! Thanks so much for the helpful advice. It’s so hard not to overthink and your right it wastes a lot of energy. Thankfully mum doesn’t use google and isn’t that techy (hence the amazement of getting her on FaceTime!) so she tends to just get on! Maybe I should take a leaf from her book! Thanks again, stay well x

Not what you're looking for?

You may also like...

Raising awareness of radiotherapy pneumonitis.

My mum was diagnosed with lung cancer type 3 six months ago. The doctors explained the cancer was...

How do we escape our neglectful hospital?

Hello, my Mum had radiotherapy recently for a non small cell tumour in her bronchus. Her hospital...

Mum diagnosed with stage 4 lung cancer which has spread to pleura

Hi All, today I have found out my mums lung cancer has returned after 3 years of having a right...

Small cell lung cancer

Hi Can anyone please give me some advice? My mum has been diagnosed with a rare type of sclc that...

My Mum

Hello I was told by one of the nurses I called that this was a really good place for me to come to...