IPF any new meds?: Hi, now allergic... - Lung Cancer Support

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IPF any new meds?

Wolverton profile image
4 Replies

Hi,

now allergic to perfeniden and nintenabs anything else out there to assist obviously getting worse

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Wolverton profile image
Wolverton
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4 Replies
Denzie profile image
DenzieModeratorVolunteer

So sorry no one has responded. Most of us here have lung cancer which is treated very differently from idiopathic pulmonary fibrosis. Are you being seen at a teaching hospital? Have you talked to your doctor about clinical trials?

Wolverton profile image
Wolverton in reply toDenzie

Hi, many thanks have completed trials but latest from specialist was 'good luck' so just seeing if there is anything else out there?

Denzie profile image
DenzieModeratorVolunteer in reply toWolverton

Are you being seen by a pulmonologist at at a teaching hospital?

Wolverton profile image
Wolverton in reply toDenzie

Hi, am registered t Leicester University respiratory medicine services and although not receiving any medication have telephone reviews, have one next month when I will enquire concerning pulmonolgy, many thanks

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