When I was first diagnosed I struggled with a lot of what I was told because it just didn't make sense and seemed to contradict modern understanding of how the body works. But I was in the middle of cancer treatment and put it on the back burner until it was finished.

When I finished the cancer treatment I saw a lymphoedema therapist privately and she was a lot more positive about the condition and what I could do. Then I went to see the team at the Lymphoedema clinic in Oxford, for the first time the advice I was given made sense and made me feel that living a normal life was possible even if I didn't have the LVA operation. It was worth paying the consultation fee just for that!