Has anyone else had experience of the compression machines? Ours has been so good for us. Perhaps they don't work for everyone ?

[queryit]

[queryit]

Hullo,

I'm 66 this year. My mother has been very

careful over the years. Her mother had it

too. We helped with the study at St George's

Hospital with professor Childs. It's genetic.

I am fanatical about weight and movement

I wear sensible shoes and compression,

and just try to control it. My mother was

reaching desperation tho' it had not hardened

but so swollen all down both legs it was

difficult to walk. The Lymphapress is very

sophisticated. It has a prep programme,

an MLD massage and a finishing off

programme. Without this she would have

nothing but increasing immobility. The

machines can be minutely programmed

to our needs. So, there can only be two reasons why

people don't use them much - political/ commercial reasons

that they don't get as much publicity as MLD/ compression

therapy alone OR they don't help that many people. In the

USA they are on prescription from all the health insurance

schemes that I have seen.

[KMDB]

How much was it and do you have a contact for a trial

[queryit]

Body Brilliant in Henley on Thames gave us a free trial. I would not have bought it, if it

had not made such a difference to us both. There are videos on the manufacturers' site

Mego Afek in Israel. Body Brilliant have a web site - speak to Naomi or Gemma.

We bought the most expensive model which complete with pants cost all together £3,600. As its a medical device it may be possible to get it on the NHS. Over time its going to be cheaper to the NHS to have one of these if it works for you than MLD, stockings, and the risk of further deterioration.

Of course it may not help everyone. There are less expensive models and attachments for all parts of the body and a complete body suit.

I feel that because we can pay, people will say 'its all right for them' and that many people cant

afford it. There are machines starting at about £1,500. But as the NHS system has changed

now and practices themselves are commissioning these services, it may be possible to get the NHS to prescribe.

[KMDB]

Lsn - are you able to recommend a compression device? I talked to my lymphedema nurse today and she suggested I ask you which one is the best?

[syrup01]

I had an intensive session on one of these machines 9 x 45 minute sessions in 36 hours and It took 5kgs of weight from me. This was in hospital prior to an operation, and the massage is very therapeutic and relaxing.

[naominorthenellis]

The Lympha Press products are excellent and used widely across the world; new to the UK (2012). if you would like to try the device please contact me: [e-mail]

[mags20]

I'm on the second day of a week trial of the lymphapress pants. I have bi lateral primary lymphodema which has got rapidly worse over the last few years. It's a desert out there. GPs have no idea ,My son in law told me to walk more! Anyway, so far so good. I've had 3 sessions and discovered good and less good effects for me. Not good to keep your compression hose on during session, also, I am vertically challenged so I've lowered the amount the pants cover. The good side is quite amazing. last night I saw a hint of ankle for the first time in years.I'm hoping to have 2 sessions a day and then I will decide if i raid the piggy bank. I'll let you know.

[clown]

I bought a machine. Prof. Mortimer is against them. He told me they were a waste of money. I was told initially NOT to use it as I had high blood pressure. I have been on a strict diet and lost 30 lbs. I am no longer taking high blood pressure meds. I have begun using the machine on my arms. I am waiting to see the miracle reduction of my arms!!

[ofcourse in reply to clown]

In my opinion there is prejudice against these machines. The early ones

were unsophisticated not well programmed. but

up to date models are very

sophisticated. I found Haddenhams horrific for me

left my leg all tingly. I think the model I tried was old.

The Lymphapants from body brilliant are good for my legs - not tried arms as don't have arm lymphodema, so I'm sorry I can't comment