Hi not been on here for a long time as I've had nothing to say ,but I've a question I was diagnosed with non specific interstitial lung pneumonitis /hypersensitivity spectrum interstitial lung disease in 2020 heavy scaring to both lungs my consultant was brilliant in the first 2 yrs scans breathing test x-rays every 6 months last time I heard from him was Dec 2022 when he sent me for a scan he sent me a letter saying my scan showed the progression is mild and in his opinion insignificant at this stage and he would see me in his outpatient clinic which has never happened .My wife is getting on to me and says I should get in touch to see why they havnt sent me an appointment ,my feeling is it cant be as serious as they said and I should leave it for now as I hate going what should I do .....
Appointments : Hi not been on here for... - Living with Inter...
Appointments
Written by
ProudYorky
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2 Replies
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Hi! I'm siding with your wife! I know waiting lists are long but I would check you are actually on the list. Admin errors do occur, unfortunately.
How are you feeling? How is your breathing?
