Lipoedema help

[moley1953]

I find working 5 days on my feet makes my Lipoedema worst I want to dropto 4 days but my work place are making my life hard how can I keep going when the pain is bad and I can hardly walk

[lipoedema3]

Hi Moley, so sorry to hear how badly you are affected but lipoedema. You are not alone, many people find it affects their working life and mobility. Lipoedema Uk are the first Uk charity to work on behalf of people with lipoedema to raise awareness to improve treatments and find a cure.

Do please join us and try to persuade your doctor to do the elearning course on lipoedema on the Royal College of GPs website. We send all our members information for their doctors and health care professionals so they will become educated about the disease.

Lipoedema UK are holding a conference in June in Reading and I do hope you will be able to come as there will be many people there with similar problems and who will understand how you feel.

[aepyornis]

Hi Moley, I hope that my answer comes too late and that you have found some relief since the moment you posted. I do not know whether your GP or another specialist could help you with reducing the time you can work (in Switzerland where I live, this is possible) but it can be worth enquiring.

Besides the excellent advice from lipeodema3, there a few things that have helped me (I have suffered from lipedema for 15 years now): compression hosiery (class 2 for me), especially helping for days when I have to stand/walk a lot, aquabiking (if it is available/affordable in your area, I think it is worth giving a try, it is soft on the articulations and makes my legs actually feel light afterwards) and there is one thing that helps me to some extent with the pain and a lot with the bruises: a cream called Hirudoid in Switzerland (not whether you can find it in the UK nor its name there).

In the long run, you could maybe consider surgery?

Hope this helps and that you found some answers in the meantime.